One of the many annoying, frustrating, and mysterious symptoms of Parkinson’s disease is micrographia. Micrographia is when your handwriting gets teeny-tiny and illegible over time. Like gait freezing, it’s one of those odd motor symptoms of Parkinson’s in which your mind knows what it wants to…
Columns
Note: This column describes the author’s own experiences with Botox. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. The best way I can describe my relationship with Botox (onabotulinumtoxinA) is love-hate. I love the results, but hate the process.
I’ve always been pretty organized and logical. I like knowing the rules and the “why” behind things. My brain looks for patterns I can rely on to predict or explain everything. Growing up in a family where my dad taught seventh and eighth grade science, I was always encouraged to…
Is there something you’ve always wanted to do but never got around to doing it? For me, that thing was pottery. I believed it was something I could master, and that it’d fill a creative void in me. I took my first pottery course about 20 years ago with my…
The name of my column is “The Unshakable Optimist,” so you might expect that I’m always happy. That idea would make most of my friends snort with laughter. I’m fun, but I can still get pretty cranky sometimes. I am fundamentally optimistic, but I’m far from a Pollyanna. I…
A few months ago, my mom called me up and asked if I’d be willing to take her and my dad to a holy site in France after my sister’s wedding. Every year, about 4 million people travel from around the world to the Grotto of Lourdes, located…
For over 15 years now, I’ve been on the receiving end of all sorts of reactions when it comes to my husband and his early-onset Parkinson’s disease. Strangers are typically caught by surprise to hear that he was diagnosed at age 38, and they usually don’t seem to know…
Before the pandemic, I traveled for work frequently — 40-plus weeks a year attending meetings and conferences for over a decade. I’d gotten used to life on the road, but early-onset Parkinson’s disease added new layers of difficulty, especially when it came to navigating in public. When I was…
Last in a series. Read parts one and two. Before I was diagnosed with Parkinson’s disease in 2015, I used to love getting in front of people to talk to them, usually about food, farming, or buying locally. I found it thrilling. I felt confident and intelligent…
Being told you have a chronic illness can make you feel different from the rest of the world. And when there’s something unique about that illness or diagnosis, it can make you feel even further from “normal.” I’ve written about the challenges of finding the right medical care team…
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