Possibilities with Parkinson's - a Column by Dr. C

early stage, remission, default mode network, insular cortex, criteria, hallucinations, storm

Dr. C is the familiar pseudonym for readers who visit “Possibilities with Parkinson’s.” The love of writing has spanned his careers as a research theoretician, brain rehabilitation clinician, and college professor. Dr. C was first diagnosed with early-stage Parkinson’s disease in 2014. His interest in how Parkinson’s disease can manifest itself in other body and mind symptoms has become a focused area for his research and writing. His goal is to share current medical research on how Parkinson’s can be diagnosed in early stages, and to help other early-stage Parkinson’s patients manage their disease process in a holistic healing approach.

The Well of Resources: Managing Chronic Illness

It’s the hand I have been dealt: Parkinson’s for the rest of my life. The good news is I have lucid days. With the right tools, I can remain a productive member of society and a minimal burden on family. I maintain a mental image, my “well of resources,” throughout…

Akathisia and Constipation: The Odd Couple

Sometimes, the call of nature is a daily dash to the bathroom. At least it used to be for me. I had a regular routine — until Parkinson’s disease came along. Now, I don’t sense “having to go” in the same way. Days will go by without a visit to…

Off Periods and Biological Clock Malfunctions

Before I was diagnosed with Parkinson’s disease seven years ago, I hadn’t heard the term “off periods.” After getting involved in the Parkinson’s community, I discovered that the term is frequently used. One reader asked, “Why do my symptoms get so bad in the early evening?” My response was,…

How I’m Doing With My New Parkinson’s Self

Many of us with Parkinson’s disease experience a shift from our former persona to our new self. Some readers have reported that they can no longer do what they once used to do. Some lost attributes are physical — we can’t walk as far as we used to or participate…

Routine Helps When Living With Chronic Illness

Many writers offering chronic disease management tips suggest establishing a routine. Doing this while battling a chronic illness is no easy task. It used to be that I could push myself hard to get something done, and all I would feel afterward is tired. Now when I push like that,…

The Loss of Identity and the Quest for a New Self

My life with Parkinson’s disease is so strange that I sometimes feel as if I don’t know my own self anymore. I have a runny nose that isn’t attributable to allergies or viruses. Rather, it’s a dysregulation effect of the disease. I feel sadness that…

Facing the Beast and Being Honest About My Suffering

Even after years of practicing the Parkinson’s disease self-management program I initiated and developed, which I call “TBM,” I still experience suffering in the form of intense pain, brain fog, and emotionally turbulent days. Still, I must face the beast. It’s a chaotic experience, difficult to translate, and not…

A Caregiver’s Role in the ‘TBM’ Support Partnership

As this chronic illness progression continues to steal away functioning, I need more support. When I previously wrote about the excellent role Mrs. Dr. C plays within the support partnership, a reader asked, “How do I get me a Mrs. Dr. C relationship?” I didn’t reply at the time.