Author Archives: Mary Chapman

Fox Foundation Honors Advocacy of Lawmakers, Community Leaders

A television producer, legislators, and movement disorder specialists are among recent recipients of The Michael J. Fox Foundation’s (MJFF) 2020 Parkinson’s Advocacy Awards. The annual presentation, which this year took place virtually at the organization’s Parkinson’s Policy Forum, recognizes individuals or groups that do outstanding work advocating on behalf…

Peruvian Family Sell Their Home to Afford Mother’s DBS Treatment

Dorys, a 66-year-old woman with Parkinson’s who lives in Peru, was able to be treated for her progressive disease through an extreme sacrifice: the sale of her family’s home. Diagnosed 15 years earlier, the disease had rendered Dorys unable to do much of anything. Her physicians suggested a surgical treatment…

MJFF Parkinson’s Policy Forum Aims to Restore US Research Funds to $25M

More than 350 disease advocates, representing all 50 U.S. states, took part in The Michael J. Fox Foundation (MJFF) virtual Parkinson’s Policy Forum, urging lawmakers to increase federal investment in Parkinson’s disease (PD) research after years of stagnant support. Annual funding for the Department of Defense’s Parkinson’s Research…

UK Survey Seeks Input from Dementia Patient Caregivers

Parkinson’s UK has opened a survey aimed at understanding the experiences of caregivers of people who have Lewy body dementia or Parkinson’s disease dementia. The survey seeks to shed light on the support caregivers receive, and caregivers’ and patients’ experiences with the health and social care system in…