Author Archives: Mary Chapman

Parkinson’s UK Opens Initiative to Bring Racial Groups Into Research

A Parkinson’s UK effort to bring greater racial and ethnic inclusivity to research into Parkinson’s disease is moving forward with new collaborations and a diverse steering group. The organization announced its initiative in March, aiming to improve ethnic representation in Parkinson’s investigations and clinical trials — with an early focus on Black…

Parkinson’s Foundation Expanding Its Global Care Network for Patients

To expand access to quality care, the Parkinson’s Foundation is expanding to 60 the Centers of Excellence within its Global Care Network for Parkinson’s disease, and adding a new level of recognized excellence, called Comprehensive Care Centers. A total of 15 medical centers found to be providing “outstanding” and specialized clinical care and resources…

New Engagement Council Seeks Patient Insight for Treatment R&D

Aiming to improve the clinical outcomes of people with Parkinson’s disease, pharmaceutical company UCB is partnering with key U.K. and U.S. nonprofits to establish the Patient Engagement Council for Parkinson’s Research. UCB is teaming up with the Parkinson’s Foundation in the U.S. and Parkinson’s UK in launching…

‘Yours, Truly’ Campaign Focuses on Non-motor Symptoms

To heighten awareness and understanding of non-motor Parkinson’s disease symptoms such as hallucinations and delusions, Acadia Pharmaceuticals and StoryCorps have teamed up to open Yours, Truly, a multicultural storytelling campaign. The national effort, which also seeks to reduce stigmas surrounding non-motor symptoms, is timed to National…

Fox Takes Stage at ‘A Funny Thing Happened’ Gala

Those attending The Michael J. Fox Foundation’s (MJFF) “A Funny Thing Happened on the Way to Cure Parkinson’s” annual fundraiser got to hear from the organization’s founder, Michael J. Fox. Nearly 700 supporters converged on the Jazz at Lincoln Center in New York City recently to celebrate the…

Georgia Southern Speech Center Wins Parkinson Voice Project Grant

A grant from the Parkinson Voice Project will be used to enhance the training and resources available to speech language pathologists and graduate students with the RiteCare Center for Communication Disorders at Georgia Southern University. Such awards, whose sum was not disclosed, are given annually by Parkinson Voice Project (PVP) through…

Supernus to Acquire Adamas and Its Therapies, Gocovri and Osmolex ER

Two established Parkinson’s disease (PD) treatments — Gocovri (amantadine) and Osmolex ER (amantadine hydrochloride) — will move to Supernus’ Pharmaceuticals when it completes an agreement now in place for it to acquire Adamas Pharmaceutical. The $450 million agreement — $50 million of which is contingent upon certain…

Trial of Weekly, Intense Exercise in Delaying Parkinson’s Starts Enrolling

Enrollment of Parkinson’s patients has begun in a clinical trial seeking to determine whether high-intensity endurance treadmill exercise can slow progression in people with early-stage disease who have not begun taking Parkinson’s medications. Called a Study in Parkinson Disease of Exercise, or SPARX3 (NCT04284436), the Northwestern University-sponsored clinical trial…

Parkinson’s UK Opens Campaign to Heighten Awareness, Empathy

Building upon previous efforts, Parkinson’s UK has opened a monthlong marketing campaign aiming for a better understanding of Parkinson’s disease — particularly among young adults — and of the daily challenges facing patients, caregivers, and family members. Specifically, the group wants to help people more deeply understand and care…

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