Dr. C,  —

To My Neurologist: In an article published at KevinMD.com, authors of a study on the experience of Parkinson’s care partners suggest that asking a patient or care partner to write a letter — instead of relying solely on verbal conversation — illuminates new aspects of the physician-patient-family relationship.

Since being diagnosed with Parkinson’s disease (PD) in 2014, I’ve been on a quest to discover scientifically validated tools that will enable me to live better with this disabling disease. My name for this toolbox, my Parkinson’s self-management program, is TBM. “T” is for threshold management, “B” is for…

To live better with Parkinson’s disease, I had to relearn how to walk – “performing” while using mindful movements instead of absent-minded walking. I had to relearn how to talk, being mindful of volume, projection, and using lots of “pause between” to clarify my thoughts before blurting. I…

The “pause between” is my new Parkinson’s self-management tool. I use it every day to help me switch from old ways of reacting to the “flicker effect” (dysregulated systems). It provides improved threshold management and mindful movements, which make life easier. The old ways are like a paved…

Armed with the tools of threshold management and mindful movements, I am ready to put the brakes on this accelerating Parkinson’s progression. Having tools and using them wisely are two different things. It’s the distinction between the design and delivery of my Parkinson’s self-management program. For me, the use…

One of the major goals I have for managing Parkinson’s disease is to decrease the frequency and intensity of the “ugly days.” Ugly days are episodic in my life but still require managing symptoms every day. If I can keep the worst of the symptoms at bay, I — and…

While searching for a way to communicate telepathically, German psychiatrist Hans Berger invented the EEG machine to measure pulsating electrical brain activity in 1924. Professing my ignorance, I know more about telepathy as “advanced empathy” from my PhD thesis than I do about electroencephalography, or EEG. Seldom do I…

Someone once uttered the maxim, “Everybody talks about the weather, but nobody does anything about it.” If we apply that notion to stress we could say, “Everybody talks about stress, but nobody seems to do anything about it.” This seems particularly true when Parkinson’s disease (PD) patients and their…

I was surprised to discover a link between my chronic runny nose and Parkinson’s disease (PD) while I was doing research on the effect of over-the-counter antihistamines on PD medications. I have always thought that my chronic runny nose was because of allergies. I sneeze when I walk down the…

I don’t think a monkey should own a wrench. Monkey wrenches seem to be thrown from nowhere and land at the most unexpected and undesired moments. I’ve had several of these monkey wrenches land in my life recently, causing setbacks related to Parkinson’s disease (PD). Now, I’m back to more…