Author Archives: Dr. C

8 Steps I Take to Get Better Sleep With Parkinson’s

Ever had one of those mornings when you wake up and look around, but you’re not sure where you are or how you got there? It used to happen regularly to me when I was a child sleeping overnight at my grandmother’s house. But one time was different. I woke…

It’s a Horrible Illness but You Can Change That

My Parkinson’s symptoms have gotten worse. Every day has two peak off times that I think of as “horrible.” During peak off periods, I experience the following sequence: First: Pain flares have surges up to levels 7 and 8. It can include 15 different pain locations, but only three…

COVID-19 and Flu Viruses Can Worsen Parkinson’s Symptoms

It’s flu season, my least favorite time of year. I always experience some flu-like reactions to the vaccine and get a mild viral infection anyway. This year, after receiving two doses of the COVID-19 vaccine, I experienced strong (not adverse) reactions. Given the association between viruses and the exacerbation…

How Do You Know When Your Parkinson’s Is Getting Worse?

One of my biggest problems with the current science about Parkinson’s disease is the way that progression is described. Early stages of the disease are poorly understood and explained. The transition from early to middle stage also lacks a firm definition, particularly if one looks at the disease as…

How We Make Our Relationship Work With Parkinson’s

“Mrs. Dr. C, I’d like to know how you are doing,” says Neo, Dr. C’s inner voice that facilitates conversations. “Recent events have been stressful, yet you and the good doctor seem to stay calm. There is almost no effect on your relationship. Most couples would have had at least…

Encouragement Empowers and Helps Me to Manage Loneliness

This holiday season plucked discordant strings of loneliness for me, which resonated off-key because of an overlap with exacerbating Parkinson’s symptoms. We tried the family video chat. Maybe we are too old-fashioned, but the experience left us feeling empty and even lonelier. Mrs. Dr. C had a slight advantage with…

Find the Joy, Even in the Worst of Times

I am seeking the joy in life. It’s difficult with medical setbacks or the off-period surges of pain and emotion. But joy is still available. I know it. I feel it. I’m showing up every day to find it, even during the worst of times. There are times when my…

Medical Setbacks Make Life Harder

I recently had an unusual attack of kidney stones, passing 20 medium to large crystals within 24 hours. I stopped taking the plant-based vitamin I was trying, thinking it was the culprit, and the stones stopped. But the healing process took a surprisingly long time. My usual routine was thrown…

The Possibilities That Arise From Adaptability

Celebrating the recent holiday here in the U.S. tested our ability to adapt. It has always been a time for the family to gather, but not this year. Our family members decided not to congregate in a physical space. Instead, we adapted, connected through video, spoke on the phone, and…

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