How to Stay Engaged After Parkinson’s Awareness Month

Every year in April, Parkinson’s Awareness Month comes and goes, and I find myself wondering if anything has changed. Did the temporary boost of attention spark change in the medical community? Did fundraising efforts make a difference in our pursuit to end this disease? How might we maintain our…

Parkinson’s Foundation Emphasizes Patient Role in Clinical Research

The Parkinson’s Foundation is making an effort to put patients at the center of clinical research, both through its Research Advocates program and more recently, patient advisory boards, funded by the Patient-Centered Outcomes Research Institute (PCORI). Since 2008, the foundation’s advocacy program has trained more than 300…