“Freezing” is when an individual suddenly feels like they’re glued to the ground. Parkinson’s disease patients often experience freezing during the late stages of the disease. It can occur while the person is in motion or after they’ve been stationary and then attempt to move. It’s associated with complicated…
Shaking Things Up
— Mary Beth Skylis
Mary Beth Skylis (she/her) lives in Colorado, where she works as a full-time freelance writer. As a columnist for Backpacker Magazine and Women’s Health, she spends most of her time learning about the latest developments in the outdoor and health industries. When her dad was diagnosed with Parkinson’s disease in 2013, she began conducting research and looking for ways to share her journey. Joining Bionews was the result. Now she works as a forum moderator and continues to share monthly musings about life with Parkinson’s disease.
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A few years ago, I accompanied my dad, who has Parkinson’s disease, to a neurology appointment to observe how his doctor interacted with him and assessed whether his deep brain stimulation hardware needed adjustment. The doctor asked if he was taking the recommended dosage of levodopa at the scheduled…
I don’t remember when I started measuring my life in increments of time. But I feel the seconds slipping through my fingers. I think about using quantum mechanics to split myself in two so that I can be at sea and with my parents at the same time. Why…
My dad is a soft-spoken soul. He observes the madness of our lives while quietly rocking in his plushy black chair. His philosophy has always been passive: Worrying doesn’t help you navigate tribulation, and aggression is destructive. So when he told me he was going to join the Rock Steady…
When I was in high school, I followed the written journey of a classmate who was diagnosed with leukemia. Miles Levin struggled to comprehend a senseless battle through the exploration of words. He wore the armor of someone who was too young to fight cancer when he wrote, “Dying is…
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