Do you ever feel like screaming? On the inside, I scream fairly often. Usually, the theme is “You don’t understand!” and it’s in conjunction with some incident where it’s very clear that 1) the person doesn’t know me at all, and 2) all they can see is a shaky, slow,…
Living My Best Life — Christine Scheer
Christine Scheer was diagnosed in 2015, at the age of 54, with Parkinson’s disease. She is a retired chef who lives on a farm with her husband, John, in London, Ontario, Canada. She firmly believes in the power of exercise to slow down the progression of Parkinson’s. Her hope for her column, “Living My Best Life,” is that she can get conversations started and raise awareness by engaging those in the PD community and beyond.
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A couple of years ago, one of the Parkinson’s organizations asked: “What good things have happened to you because of your Parkinson’s diagnosis?” I found this question really interesting, because I think most of us with this disease think that if anything good happens to us, it’s despite our…
A friend told me recently that she was very fearful about what the future held for her with Parkinson’s disease. This got me thinking about how I feel about the future. Was I afraid? After some soul searching, I realized that, at this point at least, I’m not afraid.
Last in a series. Read part one. Recently, I had terrible abdominal pain in the middle of the night. It was so bad that I was doubled over and couldn’t sleep. I thought it was appendicitis, or kidney stones, or maybe diverticulosis. I tried to walk it off and…
First in a series. We were careening down our gravel road at breakneck speed. “Can you go any faster?” I yelled at my husband, John. Gravel flew out from under the car tires, squirrels scattered, and my eyeballs were sweating. We live on a peaceful farm that is accessible by…
Getting older isn’t for sissies, my mom always said. She also said “Merry Christmas” to me in July one year and noted how everyone in her care home had gray hair (she had been gray since her 30s). She was spot on about the challenges of aging, though, especially for…
Note: This column describes the author’s own experiences with probiotics. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy or supplement. What I’m about to share with you is not an endorsement of any product; it’s simply my own story.
Even though I can still drive, I always welcome the offer of a drive somewhere by somebody else. It’s not just about the convenience but the companionship that comes with it. Usually, it’s my husband, John, but often, it’s our good friends and neighbors who step in. Their patience and…
This spring was a soggy one in southwestern Ontario, and nobody loves the damp more than big, black carpenter ants. An army of them invaded our house, so I spent a couple weeks stepping, stomping, and trying to poison the little monsters. They were everywhere, but mostly, they loved our…
“Squash the bug, Barry!” my friend Dave yelled across the boxing gym. Our other friend Barry had been on his way to get a drink of water and had frozen. When Dave shouted, Barry lifted one leg and stomped it down (picture somebody squishing a bug), and that got him…
Do you ever have moments when you forget you have Parkinson’s disease? Sometimes, in those first few sleepy moments when I wake up, I feel good. Then, of course, I start to tremor, or my muscles clench, or I get out of bed and can hardly stand. It’s…
My husband, John, and I recently embarked on a memorable trip to the Dominican Republic. We’ve been there before, but this year was special: We’d be babysitting our 6-month-old granddaughter for part of the time and enjoying the company of her parents and the sunny and gorgeous Dominican weather. My…
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