Forum Replies Created

  • Can anyone tell me how to get Dr D Bryan’s bbook PD bad the B therapy?? I’ve done searches to no avail.

  • Janet LeBlanc

    Member
    March 8, 2023 at 5:58 pm in reply to: Naturopathic Treatment of PD

    First I am not a healthcare professional and can only offer my personal perspective. I suggest looking into a company called CHK Nutrition and also research the Patricia Kane protocol. The CHK products can only be acquired and used with doctor supervision. If you email the company thru their website and request a list of providers in your area they will send the list to you. Their supplements are plant based and are said to naturally raise dopamine levels. My experience has been positive. I was diagnosed in 2008 and began the supplements about Sept 2008. My main symptom is tremor. To date, I do not take medication for my PD. I do take a regimen of these supplements under doctor supervision.

    I also receive the Patricia Kane protocol once per week. For me that consists of 3–IV pushes- one of 10cc Glutathione along with 10cc of sterile water. A second of Phosphodityl Choline (not sure of the amount) and a third IV of Leukovarin ( not sure of the amount).

    I recently (last week) saw my regular neurologist. He does not endorse my use of supplements and always offers me medication. However, He has said he thinks I’m doing exceptionally well and remarked that he wouldn’t change anything if he were me. I attribute my success to the consistency with which I have followed this program and the kindness and support of the dr who supervised it.

    On the downside – none of it is covered by insurance and so I spend a fair amount to maintain these programs. Another advantage I have found is that I have not been sick at all for the past 13 of the 15 years I’ve been on it (no colds, flu, Covid, etc). I hope you find this info Helpful and if you decide to try any of it, i hope you have as good an experience as I have had.

  • Janet LeBlanc

    Member
    August 11, 2022 at 7:16 pm in reply to: Does anyone else in your family have Parkinson’s?

    Yes, my maternal grandfather had it. I have a gene for it.

  • Janet LeBlanc

    Member
    June 16, 2022 at 4:59 pm in reply to: Does anyone else in your family have Parkinson’s?

    My maternal grandfather had PD.

  • Janet LeBlanc

    Member
    May 4, 2022 at 6:50 pm in reply to: Do you use music to manage Parkinson’s disease?

    Yes music is very important to me I particularly enjoy\folk music . Bob Dylan ,dThe traveling WILLBURYS, MARY GAUTHIER.

  • Janet LeBlanc

    Member
    March 12, 2024 at 5:55 pm in reply to: What do you think of the term ‘Parkie’?

    I agree! I find it offensive and dismissive.

  • Janet LeBlanc

    Member
    March 12, 2024 at 5:52 pm in reply to: What do you think of the term ‘Parkie’?

    I hope not. I find Parkie dismissive and offensive I would not appreciate being called a Parkiie. I do have a sense of humor but I find nothing humorous about PD.

  • Janet LeBlanc

    Member
    December 23, 2023 at 8:58 pm in reply to: What kind of footwear do you prefer?

    Sketchers slip-ins: easy to put on, numerous colors, comfortable and reasonably priced.

  • Janet LeBlanc

    Member
    April 4, 2023 at 8:08 pm in reply to: Mucuna v Madopar

    I use mucuna from a company Called CHK NUTRITION . If you email them with your zip codE, City and state they will send you a list of providers in your area because the mucuna. I have successfully remained on pharmaceuticals using mucuna. Hi

  • Janet LeBlanc

    Member
    April 4, 2023 at 7:49 pm in reply to: Mucuna v Madopar

    I use mucuna from a company Called CHK NUTRITION . If you email them with your zip codE, City and state they will send you a list of providers in your area because the … I have successfully remained on pharmaceuticals using mucuna.

  • Janet LeBlanc

    Member
    December 29, 2022 at 5:09 pm in reply to: Levodopa Reduction?

    I was diagnosed in 2008 and have maNaged to do w/o meds thus far. I do take supplements that include mucuna puriens. The supplements are from a company called CHK Nutrition and must be obtained through a doctors office. I found a dr who worked with these supplements by calling CHK NUTRITION and asking them for alist of Dr’s who ordered their product in my area. (Houston).

  • Janet LeBlanc

    Member
    October 13, 2022 at 5:57 pm in reply to: Where do you live?

    Houston, Texas USA
    O

  • Janet LeBlanc

    Member
    June 30, 2022 at 3:00 pm in reply to: Best Mattress for PD?

    I think grab bars would help me just wondering where you plan on installing them?

  • Janet LeBlanc

    Member
    May 4, 2022 at 8:05 pm in reply to: Naturopathic Treatment of PD

    BTW I HAVE NO MEDICAL TRAINING AND DID. MY OWN RESEAARCH. SOMEONE ELSE MAY NOT respond.

  • Janet LeBlanc

    Member
    May 4, 2022 at 7:41 pm in reply to: Naturopathic Treatment of PD

    I was diagnosed in April 2008. The use of supplements and alternative treatments has allowed me to live without meds so far. One of the most helpful treatments I receive (once a week) is the Patricia Kane protocol which involves receiving 3 IV PUSHES – one each of FOLIC ACID, PHOSPHODITYL Choline (sp?)and GLUTATHIONE (sp?). In addition, I take supplements from CHK Nutrtion. My main symptom has been right Arm and leg tremor. Until Covid I was relatively stable, then the clinic where I receive the IV pushes was shut down for6 or 7 weeks. Symptoms increased some at that time. I remain on the PK PROTOCOL and CHK Nutrition supplements and feel I’m better off avoiding the meds for now. Downside – cost these treatments are rather expensive and not covered by any insurance.