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    • #20546
      Ally
      Keymaster

      Have you experienced medication side effects and stopped taking the medication or changed the dose as a result?  How did you approach this conversation with your physician? Were you able to find something else that worked better for you?

      Related to this – if you could stop taking a medication for PD, what would it be and why would you want to eliminate it?

    • #20577
      Beth T Browne
      Participant

      Last July, when diagnosed with Parkinson’s, I was put on Carbidopa/Levodopa, 25-100mg.  I have always been petite, now at 4’11” due to osteoporosis, and was 98 before that medicine caused so much nausa I had to stop it two weeks later.  The doctor said to go get 15% Dopamine at Amazon.  Well, it is getting to close to a year, and it has done nothing to help my tremors.  I spoke with the doctor about a month and a half ago, and she gave me a bottle of Rytary.  23.75mg/95mg.  3 a day.  It did not upset my stomach, but I felt it cause more anxiety.  The enclosed side affects did say it could cause anxiety, and a pharmacist said the same, yet my doctor said it does NOT cause anxiety.  I have difficulty who to believe, as I know my anxiety has been worse since I was on it.  She got upset with me when I questioned her about the two different comments about this drug.  I thought I would go on and try it since she kept saying it didn’t cause anxiety.  But she neglected to tell me the cost was was too high for me, as my insurance would not cover it.  So, I have decided to go back to the Carbidopa, taking it only twice a day and see how my stomach can handle it.  I also am thinking of getting a second opinion.  Has anyone gotten a second or even third opinion and found it helpful?

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