Katherine

SL means sub-lingual, under the tongue.  Bypasses the gut.

I can’t even read my own handwriting anymore. It has been incredibly difficult, as I wrote by hand at least 10 hours every day before I got PD. Typing is not easy — and it is absolutely NOT the same as writing by hand, which felt almost like an art for me.

I have Pernicious Anemia, as well as Parkinson’s. This wasn’t diagnosed until several years after I had PD. Before the diagnosis of PA, I had to hold onto walls to be able to walk. I was constantly exhausted. After receiving 5 B-12 shots in a row, I could literally run a few steps. I received one shot every 4 weeks, then every 3 weeks. I HAD…[Read more]

My PGM had 5 sisters, one of whom had PD — which I only learned recently. Three of the 5 sisters had children, 4 boys and 2 girls. One son by each of the three sisters developed PD. I am the only descendent out of 15+ offspring to have PD. I diagnosed my father when he was 71 years old and had come to visit us. The trip took 5 hours and he…[Read more]

Hiccups

I had such severe nausea + extreme fatigue that I hated having to use Levadopa/Carbidopa. Three years ago, my Neurologist changed me to Rytary36.5/125 mg. Talk about a sea change! No more nausea! I still have to deal with fatigue, which occurs faithfully two hours after my first dose in the morning. It is like a sleeping pill for me: when it…[Read more]

Hiccups!

(Among another 20 – 25 other symptoms resulting from PD.) Someday maybe each of us could list them. It would be interesting to me.

I surely would like to know. I pumped breast milk for 17 months for my baby with esophageal atresia. I believe that it help to save her life (breast milk turns out to help heal the esophagus), and would do the same thing in a heartbeat. Nevertheless, I’d be interested if any new info arises.