@robynnz
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Robyn posted an update 6 months ago
@franikins Hi Fran
Sorry I have just seen your question related to the Parkinson’s Recovery Programme. I was on a low level of medication (increasing up to 300mg levodopa per day) for about a year prior to reading about this programme. I then tried to get off the medication over the next 6 months, but had to abandon that as my movement was…[Read more] -
Robyn replied to the topic Side effects and medication cessation in the forum Parkinson's Disease Medications 10 months, 2 weeks ago
Hi. I take a Madopar 62.5 (levodopa 50mg + benzeraside 12.5mg) every 3 hours and sometimes get dyskenesia. But when I started it I took only half a tablet every 2 hours and found that manageable. You can cut the rapid release tablet in half. As far as your doctor not being aware of side effects, I think this is common. There is so much…[Read more]
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Robyn replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis Information and General Questions 1 year, 8 months ago
I’m following the advice of the Parkinson’s Recovery Project (pdrecovery.org). Their theory is that people with Parkinson’s have got themselves stuck in thanatosis (near death mode), which is uniquely identified by aberrant flowing chi.
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Robyn became a registered member 1 year, 10 months ago
