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    • #13312
      Ally
      Keymaster

      As the year winds down, it’s a good time to reflect on the ways we can better use these forums to serve people with Parkinson’s. Do you have any questions or suggestions for Jean, me and our team to help us improve your experience with these forums?

    • #13891
      Lou Hevly
      Participant

      Upon logging in, where do I go to find out if anyone has posted further comments to a forum I’ve posted to?

    • #13895
      Jean Mellano
      Participant

      Lou, your best bet is to clik the box (after you respond) next to : “Notify me of follow-up replies via email”.

      Or, you can:

      1. clik on your Profile on the right side

      2.  Then clik on NOTIFICATIONS

      Or, you can:

      1. clik on your Profile on the right side

      2. Make sure on next screen that SHOW pull down box has EVERYTHING

      3. clik on ACTIVITY and you will see posts

      4.  then you can clik on the topic.

      LMK if this helps

    • #13898
      Lou Hevly
      Participant

      «1. clik on your Profile on the right side

      2. Then clik on NOTIFICATIONS»

      Doing this I get the “mindfulness” posting reference, but not this one (questions about forums) nor any of the others. Clicking the Activity button does work!

      Thanks!

       

       

       

      • #13899
        Jean Mellano
        Participant

        thanks for the feedback Lou, WordPress can be quirky and it is not always intuitive.  sometimes i wonder if it is WordPress or am i starting to lose my cognitive abilities LOL

         

        i think it is also important to clik the “Notify me of follow-up replies via email” box.

    • #13902
      Lou Hevly
      Participant

      @Jean: “i think it is also important to clik the “Notify me of follow-up replies via email” box.”

      Good idea!

    • #14808
      John McInerney
      Participant

      I have tried to post a comment on the drug I am taking but it keeps implying that ‘Madopar’ is an inappropriate word and won’t accept my post!!

      • #14809
        Jean Mellano
        Participant

        hi john, what post were u trying to respond with Madopar in the text?  could you try it again and use single quotes around ‘Madopar’?   do

        you know how to do a screenshot?

    • #17361
      Toni Shapiro
      Participant

      <p style=”text-align: center;”> Hi Ally, Yes, I have had 3 of my posts held up for moderation.  I don’t understand and I have no idea why this happens.  It’s very frustrating.</p>

    • #17787
      Toni Shapiro
      Participant

      Hello,

      I was under the impression that our posts were private in the sense that it was open only to log in members.  I just googled “mini exercise bikes and PD” as suggested in the forum in response to my post asking if anyone had experience with a mini exercise bike and to my shock my exact post was on the google page with ads for mini bikes for anyone to see.  My full name was included.  Is this normal practice? Do our actual posts come up on google under the Parkinsons Today News Forum? Is the Forum aware of this?

      Thank you

    • #18919
      fakhiuddin ahmed
      Participant

      Please encourage folks to send follow up research projects they have come across. Curing PD in mouse models is exciting but any follow up data on how long did the response lasted, did any morph into neoplastic lesions?

    • #19031
      Ally
      Keymaster

      Hi Toni, Google is probably showing you your comments in the PD forums because it’s conditioned to show you the most relevant (to you) content first. Since Google knows you access this forum, it will show you results from this forum first. Any thing you communicate in private messages is private though. If you’re concerned about your identity/personal information being too publicly visible, you can use a pseudonym – I know a number of people in this community and other forums do that. 🙂

    • #19037
      Toni Shapiro
      Participant

      Hi Ally, Thanks…I am really fine with it. I was just surprised when I saw it. 😲 Thank you for checking for me.Hope you have a nice evening.

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