For 11 wonderful years, we were blessed with having a beautiful Bernese mountain dog called Kona in our lives. He’s been gone nine years, and I still think about and talk about him nearly every day. He was 97 pounds of love, joy, and fur. He was goofy — as…
The Unshakable Optimist - a Column by Mollie Lombardi
My birthday is this month, and I’m turning 49. I’m not doing anything particularly exciting to celebrate, just dinner with some friends and my husband. Low-key birthdays are fine by me, but it is a big deal to be entering the last year of my 40s. I started this decade…
A vanity isn’t just for the vain. If any of you are like me and watch a lot of home improvement shows, you probably have some bathroom envy. My house was built in the 1970s, and our primary bathroom is definitely a “before,” not an “after,” when it comes to…
If you’re a regular reader of this column, you may have noticed I haven’t published anything new in a few weeks. You see, I was sick. I had the flu — the same terrible one that seems to be affecting people all over the country. I always say that having…
This year, I’m celebrating Parkinson’s Awareness Month by saying, “F— Parkinson’s!” If you watch the Apple TV show “Shrinking,” you’ll get exactly what I mean. The show features a group of multigenerational friends, three of whom work together at a psychiatrist’s office. (Get it? “Shrinking?”) Harrison Ford plays…
I recently started seeing a new neurologist after the doctor I’ve had since my Parkinson’s diagnosis moved out of state. This has been a big deal for me; I even devoted a column to how much I’ll miss her. I loved my doc. She saw me through 12-plus…
Having a chronic illness is exhausting in so many ways. I’ve described Parkinson’s disease as being exhausted physically on a cellular level. It’s not like being tired after running a foot race or sleeping poorly the night before. On a molecular level, it’s like my cells and neurons are…
In the 12-plus years since I was diagnosed with Parkinson’s disease, I’ve become increasingly aware of how difficult the world is to navigate physically. When I started having gait and balance issues, I realized how many uneven flooring surfaces there were, all of which had become newly noticed…
When you are diagnosed with a chronic and complex disease like Parkinson’s, it can be like learning a new language. Words like “gait” (the body’s posture while walking), “dyskinesia” (uncontrolled, involuntary movements affecting the arms, legs, head, or whole body), “micrographia” (tiny handwriting), and other strange-sounding…
Songs can be a powerful trigger for memories. I can’t hear Kermit the Frog singing “Rainbow Connection” without thinking of my family and my childhood spent playing Muppets records. I hear “In Your Eyes” by Peter Gabriel, and instantly, the image of John Cusack holding a…
Recent Posts
- Biogen and Denali halt BIIB122 trial for idiopathic Parkinson’s
- Blood test may help detect early Parkinson’s-related protein misfolding
- Finding balance between safety and dignity while caregiving for a loved one
- Parkinson’s trial to use smartphone technology to track data
- Reflecting on the many unexpected effects of being a Parkinson’s caregiver