I have long been fascinated by the idea of being “in flow.” Many of us have experienced a state of flow without realizing it, or even knowing what it is. Flow state was first identified and studied by Mihály Csíkszentmihályi, one of the founders of positive psychology. So what…
While more than 10 million people are estimated to be living with Parkinson’s disease globally, many people still don’t know much about it. My grandfather was diagnosed with Parkinson’s in his 70s, yet I knew very little about its symptoms or treatments until I was also diagnosed with it.
I have a neurologist appointment coming up soon, which has me thinking about how lucky I am to be able to say that. I’m fortunate to have a great neurologist who treats me for Parkinson’s disease. I’m also fortunate that she is just one part of a medical…
One of the most disruptive aspects of a disease like Parkinson’s is the lack of predictability, which shows up in many ways. In the long term, there is the unpredictability of how quickly and in what ways the disease will progress. There is the shorter-term uncertainty of how…
October is a busy month in my household. We celebrate both my husband’s birthday and our wedding anniversary. It’s been 19 years this year, and I can say that we never imagined where we’d be now when we said “I do.” When you plan your wedding, you don’t always think…
When it comes to weird and unexpected symptoms, Parkinson’s disease is the gift that keeps on giving. My grandfather had Parkinson’s, yet when I was diagnosed with it, the only symptom I’d heard of before was tremors. As I eventually learned, that was just the tip of the iceberg.
Parkinson’s disease is not only degenerative but incurable, which means it gets worse, to some degree, every day. While we still don’t have any proven disease-modifying treatments — those that will actually stop, reverse, and cure Parkinson’s — advances in technology have helped to control symptoms. And as I’ve…
Anniversaries can be good and bad, loving celebrations or reminders of past tragedies. For me, the anniversary of my diagnosis with Parkinson’s disease is a bit of both. It was awful and tragic and life-altering in some ways. But it’s also the day we named the monster that…
September is the most active month for hurricanes in the U.S., so it makes sense that it’s also National Preparedness Month. It’s essential to consider how you’d survive in the face of a natural disaster — be it a hurricane, flood, or wildfire — and to make plans for…
One of the most unhelpful things you can say to a Parkinson’s disease patient is, “Just relax and get comfortable.” For me, and many of my fellow Parkinson’s warriors, the idea of relaxing and being comfortable is a ship that sailed long ago. I’m almost always experiencing some level…
Get regular updates to your inbox.
