I’m on the phone with a technology expert from the Los Angeles County Sheriff’s Department — the biggest sheriff’s department in the world — when the idea strikes me: Dad could use an Apple Watch to help monitor potential falls caused by his…
Shaking Things Up - a Column by Mary Beth Skylis
“Hi, Mom,” I say after hitting the green button on my phone. “How are you?” “Hi, honey. I’m doing well,” she responds. It’s an early Sunday afternoon and she sounds chipper. We don’t connect often, so I’m grateful to hear her voice. But I’m curious about the call. Is something…
Years ago, my dad realized that acute stress made his Parkinson’s symptoms worse. He was more inclined to freeze or experience exacerbated tremors, especially if he was full of anxiety. This revelation led him to focus on reducing the amount of stress he experiences on a regular…
Snow is falling from the sky in tufts here in the Colorado mountains as I write this. Christmas is on my brain. It’s the time of year when my sister and I book flights back to Michigan and brainstorm ways to make the season memorable. For me, doing that means…
After my dad was diagnosed with Parkinson’s disease, one of the most frightening parts for me was learning about the later stages of the disease. Parkinson’s is a progressive disease, and it’s hard to think about how the symptoms will worsen over time. Of course,…
“Let’s play a game,” my sister, Anne Marie, suggested one balmy summer evening. Our entire family had congregated in Northern Michigan for a weeklong vacation, and we were looking to create some fun. Anne Marie explained the rules of the game: One player would read a question out…
I have an autoimmune disease. I’ve known about it for about as long as my dad has known about his Parkinson’s disease. And sometimes it’s striking to see how the treatment strategies vary between illnesses. Both diseases are progressive, causing worsening symptoms over time. My medication dosages…
When I was a kid, the world was divided into the haves and the have-nots. The haves never wanted for anything, while the have-nots had to find a way to navigate their lives without the appropriate resources to do so. I fell into the have-nots. And anytime I struggled to…
Drooling is embarrassing. I’ve caught myself spacing out with a trickle of saliva slipping out of my lips before. I can’t help but peer around the room to see if anyone noticed. I know I’m not the only one who has experienced this. My dad recently explained to me that…
“Wow, look at that walk,” my older sister says with a smile. Dad is making his way across the living room in preparation for his birthday party. His steps are fluid and unbroken. It’s a sight that we savor. I love to see my dad unencumbered by his…
Recent Posts
- New support group offers help, connection for Parkinson’s families
- Looking back at the changing roles and relationships in Parkinson’s
- Lab-made small molecule may help slow brain disease progression
- New report shows Parkinson’s costs surpass $82 billion in US in 2024
- Pushing forward this Parkinson’s Awareness Month with boldness, grace