News

Survey Shows Canadian Parkinson’s Community’s Key Concerns

Long waits for diagnosis, limited access to specialized treatments and services, and out-of-pocket healthcare costs are among key concerns of Parkinson’s patients, caregivers, and medical-service providers, according to a Parkinson Canada survey. The organization created the 30-minute online survey to better understand the challenges that patients, caregivers, and…

Michael J. Fox Foundation Offers Educational Tool to Boost Participation in Parkinson’s Clinical Studies

The Michael J. Fox Foundation for Parkinson’s Research (MJFF) has launched an educational suite called “Parkinson’s Clinical Trial Companion” to increase patients’ participation in clinical trials. The new resource educates patients and families about the benefits of participating in research, and provides teams conducting clinical trials with high-quality…

APDA’s ‘Look Closer’ Campaign Captures Full Lives of Parkinson’s Patients

The American Parkinson Disease Association (APDA) launched a series of public service announcements via television stations and social media channels to promote a richer understanding of Parkinson’s disease and how it affects and inspires those touched by it. Look Closer, the centerpiece the group’s monthlong campaign that coincides with Parkinson’s Disease Awareness…

2 Markers of Parkinson’s Progression May Help Trials in Newly Diagnosed Patients, Study Says

Clinical trials in patients with early stage Parkinson’s may benefit from assessing markers of disease progression — namely, changes in the Movement Disorder Society (MDS)-Unified Parkinson’s Disease Rating Scale (MDS-UPDRS) and dopamine transporter imaging, according to five-year results in a major observational study. The study, “Longitudinal Change of Clinical…

Sidekicks Program to Connect Parkinson’s Patients and Youth

Two Parkinson’s organizations are joining forces with the Davis Phinney Foundation and Lundbeck to start a program that connects people with Parkinson’s disease and school-aged youth through fun and creative story-sharing. A key goal of  Sidekicks is to let Parkinson’s patients and youths share stories about each other…