Columns

Find the Joy, Even in the Worst of Times

I am seeking the joy in life. It’s difficult with medical setbacks or the off-period surges of pain and emotion. But joy is still available. I know it. I feel it. I’m showing up every day to find it, even during the worst of times. There are times when my…

As the Snow Falls, Our Anxieties Melt Away

A fire in the fireplace snaps, crackles, and pops as it warms my toes and casts dancing shadows on the walls. Nearby, a cup of spiced tea sits on the table beside me, filling the room with a fragrant aroma of cinnamon and other magical, tantalizing odors. Fresh baked…

Finding the Best Things During the Worst Times

It’s hard to look back on this past year without finding some sort of grief, anger, confusion, heartache, or other emotion that gives us pause. We stop and ask ourselves if anything good has come of this year or if we took unwelcome steps, one after another, that led…

Medical Setbacks Make Life Harder

I recently had an unusual attack of kidney stones, passing 20 medium to large crystals within 24 hours. I stopped taking the plant-based vitamin I was trying, thinking it was the culprit, and the stones stopped. But the healing process took a surprisingly long time. My usual routine was thrown…

Stitching Moments Together With My Dad

Every once in a while, the urge to crochet washes over me. It usually happens when the temperatures start to dip into the 30s when Christmas is just around the corner. During a recent visit home, the desire to make something with my hands emerged…

Managing Parkinson’s Disease Is a Full-time Job

“Dealing with a diagnosis of Parkinson’s is not easy and there is no one, single technique that will ease the pain and no magic pill that will miraculously enable you to cope with it.” — John Baxter Parkinson’s treatment is a lifelong commitment that involves much more than just taking…

The Lazy Man’s Way of Writing About Parkinson’s Disease

Sometimes we can get confused with all the abbreviations used to communicate in the different Parkinson’s communities. It can be frustrating, especially if you are newly diagnosed or beginning to gather information about the disease. That is why I try to spell out words instead of resorting to shortcuts. (Although…

The Possibilities That Arise From Adaptability

Celebrating the recent holiday here in the U.S. tested our ability to adapt. It has always been a time for the family to gather, but not this year. Our family members decided not to congregate in a physical space. Instead, we adapted, connected through video, spoke on the phone, and…

Finding Hope and Joy in the Detour of 2020

As a parent with young-onset Parkinson’s disease, I’ve been adjusting and adapting to the bumps and detours of my life. One of those adjustments has been our expectations for family events, from milestone events to everyday activities. With young-onset Parkinson’s, we hope our health doesn’t rob us or our family…