Research suggests a genetic connection between Parkinson’s disease, Alzheimer’s disease, and Lewy body dementia. So, when my father was diagnosed with Alzheimer’s, I became an advocate for dementia awareness. I may or may not face dementia as my Parkinson’s progresses, but my dad is facing it now. Together,…
Many Parkinson’s caregivers report seeing changes to their loved ones as the disease progresses. Some people experience more irritability. Others might see apathy. Maybe it’s just that there’s been a subtle adaptation to how they experience the world. Since my dad’s diagnosis in 2013, I’ve definitely seen changes in…
In my book “Possibilities with Parkinson’s: A Fresh Look,” the insular cortex is described as the second dopamine center. Researchers surmise that the second dopamine center contributes to the nonmotor symptoms associated with the disease and its individualistic presentation. The second dopamine center is largely responsible for…
We encounter signs almost every day of our lives. Traffic lights tell us when to stop or go, and road signs tell us which exit to take. Turn signals (when used) let us know if the car in front of us is turning left or right. Dark clouds in the…
“If you have met a person with Parkinson’s, then you have seen just one patient with Parkinson’s.” I heard a medical doctor say this at a Parkinson’s disease (PD) support group meeting and presentation several years ago. After attending four different PD support groups, the truth of individualized presentation was…
Imagine moving to a brand-new town, thousands of miles away from anyone you know. How would you feel after a few days? Weeks? Months? The feeling of isolation that might gnaw at your heart is similar to what many of us with Parkinson’s disease experience, especially when diagnosed at a…
Assistive technology (AT) can help people with Parkinson’s disease (PD) complete activities of daily living, such as cooking, eating, dressing, writing, and walking. The Assistive Technology Industry Association defines AT as “any item, piece of equipment, software program, or product system that is used to increase, maintain, or improve…
I was diagnosed with Parkinson’s disease at 64. That is close to the average age that most Parkinson’s patients are diagnosed. My goal has been to live to the age of 85, one year beyond the age of my grandfather. In my lineage, he held the record for years lived.
The first thought that popped into my head when I realized August is Medical Alert Awareness Month was, “I’ve fallen and I can’t get up.” While that famous line from commercials in the 1980s and early ’90s became part of pop culture, it also represented a serious concern that continues…
What do you say to someone who is diagnosed with Parkinson’s disease (PD)? What words help and what words hinder? My sister Bev was diagnosed with stage 3 PD, and her caregivers, including me, have challenges in knowing what to say to her and how to say it in…
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