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The Financial Burden From Parkinson’s Exacts a High Cost

Caregivers for people with Parkinson’s disease (PD) know the physical and emotional toll it exacts on those who suffer from it. The financial burden from Parkinson’s disease is less well known. My sister Bev has stage 3 PD and struggles with balance, cognitive, and falling issues. She also…

A Fresh Look at Parkinson’s Self-Management

The power of the human mind to reshape itself, adapt to even the most traumatic of events, is a gift given to me by the head injury patients from my past clinical experience. Their courage inspired me to find a scientific model to help me with my own Parkinson’s disease…

Kayaking May Be an Ideal Activity for Those With Parkinson’s

As Parkinson’s disease progresses, it can become harder for someone to find physical activities they can do with others, which can affect their social life. However, a few years ago, my husband, Mike, and I discovered something we could do together: kayaking. Like other paddle sports, kayaking incorporates many…

The Lighter Side of Parkinson’s

Parkinson’s disease (PD) is a serious illness that can have major effects on a person, both physically and emotionally. As a caregiver to my older sister, Bev, I have witnessed those changes in her after she was diagnosed in 2017. But can there be a lighter side to the disease?…

Managing the Flicker Effect: A Conversation With Neo

“Why are you standing on top of that chair?” Dr. C sees Neo precariously balanced on the chair under the kitchen ceiling light. Neo is the part of Dr. C’s brain that functions as his inner voice. “This lightbulb has been flickering. It’s so annoying! I’m trying to fix that.”…

Dear Parkinson’s, I’m Breaking Up With You

Dear Parkinson’s disease (PD), Wow, I can’t believe that we’ve been together for nearly 10 years. Our relationship has been a roller-coaster ride, that’s for sure. We’ve had our ups and downs — well, mostly downs when you’re around. It’s time for me to take a stand and tell you…

In Harmony: Navigating Relationships and Parkinson’s

The COVID-19 pandemic has led many of us to realize how much relationships, interactions with others, and social support mean to us. We as humans were created to be social. For people with Parkinson’s disease (PD) and other chronic illnesses, the isolation, anxiety, and depression may feel even greater. During…

Nature Calling: How Nature Helps My Sister With Parkinson’s

I once had to attend a team-building and stress-reducing exercise event for work that involved immersing ourselves in nature. Yes, there was tree hugging, leaf exploration, trail walking, and stargazing. The point of the exercise was for nature to help us get in touch with ourselves and each other. And…

Exploring Episodic Symptoms and the Flicker Effect

Previously, I wrote about the role of the second dopamine center in Parkinson’s disease (PD), which is to monitor homeostasis regulatory systems. Regulatory system malfunction is connected to PD due to insular cortex damage. In early-stage PD, this leads to episodic symptom presentation. At first, these regulatory systems…