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Does Your Care Team Include Advanced Practice Providers?

What is an APP? Advanced practice providers are highly educated healthcare professionals with advanced degrees and rigorous clinical training. We know them primarily as physician assistants (PAs) and nurse practitioners (NPs). As clinicians, they play a vital role in the ever-changing and evolving healthcare system. APPs may provide many patient…

A Parkinson’s Disease Problem, or a Me Problem?

Sometimes I treat my husband, Arman, like a child. Actually, more like a baby. It’s not because this is my nature; quite the opposite. Although I did baby our youngest child, Jake, a bit (of course), it was only because I just loved holding on to the feeling of being…

Tracking My Experiences With Delayed Mid-stage Parkinson’s Disease

Parkinson’s is a progressive brain disease. While symptoms and disease progression are unique to each person, knowing the stages of Parkinson’s can help. Some people experience changes over 20 years or more, while others find that the disease progresses more quickly. During the first five years after…

Conscious Intent Can Mitigate the Effects of a Parkinson’s Crisis

Author and neurologist Oliver Sacks used the term “crisis” to describe the episodes when Parkinson’s symptoms flare up. I’ve called these events surges, off periods, and bad days. In his classic “Awakenings,” Sacks describes the symptoms of one Parkinson’s disease patient by saying, “No…

Achieving a Calm State of Mind With the Gentle Observer

Finding moments of calm during the chaotic brainstorm of Parkinson’s disease is crucial to my self-management. Before I was diagnosed, my best stretch of continuous calm was 14 days. Now, I get excited if I can maintain 14 minutes. I see getting to the calm state of…