Columns

When our first daughter, Alexa (whom we call Lexy), was born in 1996, we were in our mid-20s. My husband, Arman, and I were obsessive first-time parents, documenting in detail her feedings, diaper contents, and sleep (or lack thereof) schedule. All visitors were required to scrub their hands before entering…

It’s difficult for people, even family, to understand the serious effects of stress on someone living with Parkinson’s disease (PD). A 2021 Nature article, “Stress and mindfulness in Parkinson’s disease — a survey in 5000 patients,”  suggests that stress has “considerable and detrimental influence on quality of life…

Our family loves musical theater. My husband, Arman, and I used to go to the theater often before we had children, and we were thrilled when our kids also took an interest. Our daughters, Lexy and Mandy, were involved in local community theater productions from a young age. As a…

I’ve written previously about how Parkinson’s disease (PD) “breaks” the biological clock that regulates our wake-sleep cycle, disrupting our daily routines and sleep. For me, it manifests most acutely during “off periods,” when everything in my body shuts down. As a 2020 article published in The American…

A new opportunity recently brought me to a different kind of Parkinson’s exercise class: “singercise.” “Singercise” consists of singing, toe-tapping, and general fun for an hour at a time. In a previous column titled “Music Therapy Can Be Just What the Doctor Ordered,” I wrote about the benefits of…

We vividly remember very few days in our lives, and the rest of our memories tend to blur together. I’m always amazed at how accurately I remember specific events from childhood, like witnessing my neighbor’s house burn to the ground when I was around 7 years old; I can still…

The most success I had helping those with brain injuries was when I had regular access to both the design and delivery of therapy. Inside a rehab center, there’s good access to both these elements. This would often change when the patient was sent home. My success in designing rehab…

Every year the president of the United States gives a State of the Union address, telling citizens (and the world) how he thinks things are going. This is me telling readers how I’m doing. It’s been eight years since I was diagnosed with Parkinson’s disease. After writing two books…

When my dad was diagnosed with Parkinson’s disease in 2013, I didn’t expect the disease to transform my worldview. But it did. Learning about the disease instilled a sense of fear and sadness in me. At first, I saw only the horror that Parkinson’s creates. How could a…

What is the best way to let your family, friends, and colleagues know that you have been diagnosed with Parkinson’s disease (PD)? Or any disease for that matter? When is the appropriate time? Should you wait until they start worrying about the changes they see and assume the worst?…