Lying down and sleeping seems like such a natural thing to do. I remember when one of my mother’s caregivers said to me, “I finally got your mother to lie down.” What? My mother didn’t know how to lie down? It’s true: Dementia had robbed her of that seemingly…
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I was watching my youngest daughter’s high school lacrosse game the other night and commented to my wife, “She’s seeing the field really well right now.” We talked a bit about how it’s obvious, from a spectator’s perspective, when our kids are bringing their A-game and are engaged and anticipating…
Caring for my father as he battled Parkinson’s disease was fraught with challenges, but nothing prepared me for the devastating blow of losing him since my last column. In the wake of his passing, I found myself thrust into a world of unfathomable sorrow. His collapse a few days…
Every time I step foot in a new country, I dive into the local culture to try to intimately understand the region. I compare and contrast it with the U.S., where I’m from, in an effort to expand my understanding and experiences. But I’m not only an explorer of geographical…
If someone says the words “Parkinson’s disease,” what’s the first thought that comes to your mind? How do you visualize this disease? I can’t help but think about how I used to visualize Parkinson’s disease. I probably learned about it at some point during my childhood, and the image…
I’m fortunate to have two daughters who are my pride and joy. We get along extremely well, and they’ve always been supportive of me, especially during my Parkinson’s diagnosis in 2015. After I had deep brain stimulation surgery in 2021, they both came to our farm to see…
Traveling can be so stressful that it often feels like we need a vacation after the vacation. For my husband, Arman, who has early-onset Parkinson’s disease, and me, all of the relaxation we enjoy during much-needed trips melts away as soon as we return to the airport. A…
Self-care sometimes gets a reputation for being a woo-woo practice — something that’s unconventional and has little scientific data to back it up. But the body of scientific evidence showing that self-care practices can have an impact is growing. A self-care routine has been shown to…
Whenever anyone asks my husband, Arman, how he is doing, his standard reply has become, “Living the dream.” He usually gets a good laugh from this response, and they quickly move on to other topics. This has become his tagline, which seems to work well for him. Living with a…
Have you ever had to run for your life? I have — a couple of times. I attend a spin class every Thursday morning at our local Y. Although the class isn’t explicitly designed for people with Parkinson’s disease, I find it remarkable how good I feel…
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