Do you remember those early days when you were newly diagnosed with Parkinson’s disease? Can you think of anything someone could’ve said to make you feel better? What do you wish they would’ve told you? I was asked this question a couple weeks ago by someone who had recently…
Note: This column describes the author’s own experiences with Botox. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. The best way I can describe my relationship with Botox (onabotulinumtoxinA) is love-hate. I love the results, but hate the process.
Is there something you’ve always wanted to do but never got around to doing it? For me, that thing was pottery. I believed it was something I could master, and that it’d fill a creative void in me. I took my first pottery course about 20 years ago with my…
Last in a series. Read parts one and two. Before I was diagnosed with Parkinson’s disease in 2015, I used to love getting in front of people to talk to them, usually about food, farming, or buying locally. I found it thrilling. I felt confident and intelligent…
Second in a series. Read part one. Every Tuesday I go on a walk with my Parkinson’s buddies. I started this “walk ‘n’ talk” group after my deep brain stimulation (DBS) surgery in 2021. I like talking about Parkinson’s, and usually I ask the other walkers questions…
First in a series. I recently heard a rumor that I wasn’t doing very well. An old friend dropped by and spoke to my husband, John. The friend said he’d heard from someone else that my health was failing. Near death, by the sound of it. Communication can be tricky,…
In the fall of 1986, I worked as a chef at the Black Swan Café in London, Ontario, Canada. The café was on Richmond Street, one of the city’s busier streets for restaurants and retail. We were excited because Rick Hansen’s Man in Motion World Tour would be coming…
In 2015, during the early days of my Parkinson’s diagnosis, everything was a blur and I didn’t know where to turn. I had just started seeing a new physiotherapist whom I immediately liked and began to forge a connection with. One day, she said to me, “If you…
When I was diagnosed with Parkinson’s in 2015, I didn’t know anyone else with the disease. Then I joined Rock Steady Boxing, a program designed specifically for those of us with Parkinson’s. I’d found my people! I had read about the program and its benefits, but…
It’s that time of year again: time for our annual Walk for Parkinson’s. I hate asking people for money, even for such a worthwhile cause as our local Parkinson’s Society here in Ontario, Canada. Since my diagnosis of Parkinson’s disease in 2015, however, I’ve felt the cause…
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