When Lori discovered at 45 that she had young-onset Parkinson’s, she struggled with her diagnosis but decided to attack it with the same tenacity, passion, and care she brought to her career as an engineer, marriage, and motherhood (of 3 boys). Now, at 52, Lori is also a writer, a Rock Steady Boxing Coach, and a personal trainer pursuing her passion of empowering others with Parkinson’s. She hopes her column, “Life, Lemons & Lemonade,” exemplifies something she learned from dancing with her husband, Mike: ”It’s not important HOW you dance. It’s THAT you dance.”
There’s a time and a season for everything, as the familiar passage notes, but I didn’t appreciate that sentiment until now. Growing up in Pennsylvania allowed me to experience the changing seasons in all of their glory. Winter brought snow, spring brought new life with flowers, summer was for swimming,…
The last chaotic push for holiday shopping is upon us. Whether you’re buying, giving, requesting, or using gift cards during day-after sales, following are a few suggestions for gifts that might benefit the people in your life with Parkinson’s disease. Above all, it’s important to remember the benefits of…
One thing I’ve been pondering lately is how vulnerable we can be when we have a medical crisis and have to go to a hospital emergency room. Imagine the following scenario: You’re a patient with young-onset Parkinson’s disease (YOPD), a subtype of early-onset Parkinson’s. In the ER, you…
As I sit here at 4:30 a.m. typing up this week’s column, how many of you are also up late reading Parkinson’s News Today or visiting the forums? As sleep eludes us, we chat online across different time zones and connect with others who are also managing…
Hope can be found in unexpected places. When you’re lucky enough to find it, grab it, hold onto it, and allow it to fill your life. One of the highlights of attending the 6th World Parkinson Congress, held in early July in Barcelona, Spain, was watching the opening ceremony…
Planning for travel is essential, and my recent trip to Spain for the 6th World Parkinson Congress (WPC) posed a question: While the host city, Barcelona, had planned for me and others with Parkinson’s through the World Parkinson Coalition’s Parkinson’s Ready program, would I be able…
“I would trade places with you,” my friend said. “You have Parkinson’s disease, but you also have people who love you. That matters.” I was speechless, but it’s true. We may take love for granted, but others notice it and wish they had it. I chose this column for…
Parkinson’s disease involves a series of wait-and-see scenarios. Which part is worse: the waiting or the seeing? If you’d asked me that question before my Parkinson’s diagnosis, the clear answer would’ve been seeing. For me, ignorance was bliss. Fast forward a decade, and my answer has changed. I’ve…
Little things can sometimes make a big impact when life happens and fate changes our plans. Everything is constantly changing — including my looks. During a recent conversation about permanent makeup, I announced, “I miss eyeliner and mascara.” Seeing the perplexed look on the faces of those around…
Becoming a grandparent while I have young-onset Parkinson’s disease is a milestone, and life with Parkinson’s is all about celebrating one day, one goal, and one milestone at a time. Diagnosed at 45, I prayed to God to help me be a good mom and, eventually, a fun…
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