Caregiving Unfiltered – a Column by Crystal Onyema

“Mr. Dynasty. Why do we have the pleasure of seeing you?” Uncle Brandon’s doctor already knew something wasn’t right. His next appointment wasn’t for another two weeks, but we’d called to ask if he could see him that day. Still, that didn’t stop him from greeting Uncle Brandon the way…

Texas weather has a way of humbling you just when you think you’ve figured it out. One of my cousins was celebrating a birthday at a local mini amusement park, and our family and friends came out to join the festivities. It was one of those rare Texas days that…

“Niece! Bring me my cup, will ya?” Once Uncle Brandon was living with Parkinson’s disease, there was rarely any confusion in our family about which cup he meant. It was THE cup, and wherever Uncle Brandon went around the house, chances were it wasn’t too far behind. It followed…

As you may already know, my uncle Brandon was a proud man. He liked to do what he could, when he could, and how he could, on his own terms. Even something as ordinary as putting on a jacket meant something to him. He had been doing it for decades…

“Will I be able to drive?” Of all the questions my uncle Brandon could’ve asked after being diagnosed with Parkinson’s disease, that was one of the first. If you knew Uncle Brandon, though, it probably wouldn’t have surprised you. This was not a man interested in becoming anybody’s passenger…

There are few sounds more frightening during a Texas summer than an air conditioner suddenly going silent. Temperatures were climbing past 100 degrees, the house was getting warmer by the minute, and my family was becoming increasingly unnerved. We called a few air-conditioning companies, but between the heat wave and…

While my family and I discussed medication schedules, doctor appointments, and what foods might work best with my uncle Brandon’s Parkinson’s disease, he sometimes had a much more pressing question: “What’s for breakfast?” Usually, the question came with a smirk and his famous cackle, as if to remind us…

One afternoon, my late uncle Brandon came inside after spending some time outdoors, and something immediately felt different. Normally, he’d head straight for the refrigerator to grab a bottle of water before settling into his chair. That afternoon, though, he rounded the corner into the hallway and … stopped. He…

When my uncle Brandon came home one time from a Parkinson’s appointment, he was quieter than usual. The news wasn’t what we had hoped for. His symptoms had gotten worse, and, even though he rarely complained, our family could tell it had been a tough day. He sat…

The fishing aisle at Bass Pro Shops was the last place I expected to leave with a memory I’ll never forget. My Uncle Brandon and I were getting ready for one of his favorite escapes: a fishing trip. Long before Parkinson’s disease entered our lives, fishing was one of…