Caregiving Unfiltered – a Column by Crystal Onyema

As my late Uncle Brandon’s Parkinson’s disease progressed, my family became increasingly involved in helping him navigate appointments, medications, physical therapy, and everyday life. But somewhere along the way, we started making mistakes. At times, we began talking about Uncle Brandon more than we talked to him. At first,…

Throughout my late uncle Brandon’s journey with Parkinson’s disease, my family made sure he kept up with his physical therapy. At one point, we started seeing progress. His balance seemed a little better. His confidence had improved. And he was buying into the process more than he had in…

If Parkinson’s disease had one ally in our household, it was my late uncle Brandon’s ability to avoid doing his home exercises. As I’ve mentioned before, Uncle Brandon was proud. He liked to stay busy, solve problems, and do things his way. Even as his Parkinson’s worsened, he wouldn’t…

As I’ve mentioned in previous columns, my family and I did our best to support my late uncle Brandon after he was diagnosed with Parkinson’s disease. We all pitched in, so there was almost always someone around to help him out. At least, that was the plan. One…

As you probably know by now if you’ve been reading my column, my late uncle Brandon liked to stay on the move. His career involved hands-on work, building things from the ground up, and figuring out problems on his own. That hardworking mentality wasn’t just part of his job. It…

Faith has always been at the center of my family’s life. As I grew up, I saw my family face tough times, believing that God would help us through. Strength, prayer, perseverance, and trust in God were just part of our daily lives. So, when my uncle Brandon was diagnosed…

Before Parkinson’s disease, my late uncle Brandon was always on the move. He always needed something to do, especially on weekends. If he wasn’t planning a hunting trip, he was outside grilling ribs, sausage, or brisket and inviting neighbors over without a second thought. The house was rarely quiet.

One of the toughest things about caregiving wasn’t always the words themselves. It was figuring out how to say them. As my uncle Brandon’s Parkinson’s disease progressed, there were certain conversations we couldn’t avoid. One of the biggest was about his mobility and the need for more support. Specifically,…

As I’ve previously mentioned, my late uncle Brandon loved a good “chill and grill.” He didn’t just grill for fun. He could put together a full Texas-style feast that always seemed to appear out of nowhere. As a kid, I used to wonder how he managed to get ribs,…

I was his niece, but Uncle Brandon meant much more to me. He felt like a second father. Back then, my dad worked nights as he tried to build his teaching career, so we didn’t see him much. To be honest, there was also an emotional distance. He grew up…