[Victoria Tamorria]

Jean

I do these exact exercises every day and have found them very helpful—well worth the effort—especially for handwriting and kitchen duties.

Vic

[Victoria Tamorria]

Thanks Jean. I’ll be seeing my doc in June. I’ll talk to my pharmacist too. I’ll let you know

 

Vic

[Victoria Tamorria]

Thanks Jean. I’ll be seeing my doc in June. I’ll talk to my pharmacist too. I’ll let you know

 

Vic

[Victoria Tamorria]

Thanks also, Jean, for being a champion for  all of us!

[Victoria Tamorria]

This is freaking me out. I live in MD and have enough Sinemet for another 2 months.

This drug works well for me—sure hope they keep making the brand name. It’s all about money I guess.

Ill be praying for that!

Vic

[Victoria Tamorria]

Jean

Thanks for the feedback. These are not your standard flashes of  old.   Good gracious even

my eyebrows get hot. I’m hypothyroid  and see an endocrinologist every three months and he’s got my numbers the way he wants them but can’t help me with the heat

My heart has been checked out as well

I hope I get some more feedback on this site

But you’re correct I tend to blame everything on PD

thanks

Vic

 

 

 

 

 

 

[Victoria Tamorria]

Did your friend improve after going off Statins?  I wonder how many of this sites users are on Statins??

I’m very curious about this topic as I’ve been on Crestor for 15 years.  I was diagnosed with PD in 2017.

Victoria

 

[Victoria Tamorria]

“Crappier” I think that should be our official PD descriptor verb!

I’m praying for you and your struggle with the meds. Thanks for your kind words.

Vic

 

 

 

 

[Victoria Tamorria]

Jean

I wondered all those years before I was diagnosed why I had trouble doing simple things and always had lower energy than just about every one on the planet. I just blamed it on my hypothyroidism. Then my internist noticed a slight tremor in my hand and sent me to a neurologist. She had me do the basic hand test and had me walk a long hallway and asked me if I realized that I did not swing my arms when I walked. Also my right leg had a slight drag to it. So that started my.year long denial trip.

Eventually,  I accepted it because other symptoms started and I tearfully gave in and took the meds which helped a lot as I explained in my earlier post.

I’m thankful that I’ve found these forums and such helpful caring people like you.

I miss my little dog so much. We lost him in January.  Praise God, I have my new little grandson to dwell on.

Vic

[Victoria Tamorria]

The first time I saw this commercial—well at the very least, it freaked me out. I saw it within 2 weeks of being diagnosed. Now, I guess I’ve gotten used to it. Probably due to the fact that I’ve finally accepted my PD—that took a whole year. I had very good luck with the meds. Anyway, getting back to the commercial, I was upset that my friends, after viewing the ad, would think I was going to go nuts and start seeing and imagining all sorts of things.  That commercial would scare the pants off anyone. But, alas, I’ve gotten used to it. I told my husband—just maybe I’ll “see” one of our many dearly loved Cairn Terriers that have passed away. I guess we all need to keep a sense of humor with PD. Big pharma should be more careful but I don’t expect that to ever happen.

 

[Victoria Tamorria]

Jean and Ally:

Polar bears—now I don’t feel so bad!

Not to minimize the experience—I’ve felt that malevolent presence as well. My husband says I keep yelling, who is it?? Get out. All nightmares are not created equal.

[Victoria Tamorria]

I have experienced waking up screaming from nightmares . I forgot to tell you. My hubby is very patient with me. At first I scared him to death but he knows how to handle the situation now. It could be the meds or just the way PD screws with the brain.  I’ll be interested to know how many more people have this symptom and weigh in on the question.

Thanks

[Victoria Tamorria]

No not a recurring theme. At least for now. But then again— this is my first grandchild, so anxiety is bound to be factored in somewhere

The shorts dream was just plain weird—right down to the color—chartreuse was a hot color in the 70’s. And, that was a very long time ago.

[Victoria Tamorria]

Yes I have some very strange dreams. My husband usually wakes me up by talking in a normal tone and reasoning with me.  I had a dream recently about a pair of shorts that I had years ago—a pair of shorts!  I really feel embarrassed telling you guys this it seems nuts. I had a dream about my husband holding my new little grandson—no matter how much I begged him, he just wouldn’t give me  the baby—he calmed me down and convinced me that all was fine.  Other nights I sleep without dreaming. I’ve always dreamed but have never had such strange—complex story lines

since I’ve been diagnosed with PD

 

 

 

[Victoria Tamorria]

Jean

I’m so sorry that you are having so much trouble with nausea. There has to be a solution for you. I guess you have done the detective work on this. It’s hard for me to believe that someone out there doesn’t have the answer. I’ll be praying for you! And,I’ll do more research.

[Victoria Tamorria]

I’m so sorry but i should have said:

carbiodopa (Lodosyn) / Levodopa (Sinemet).

25-100

[Victoria Tamorria]

I’ve not had trouble with upset stomach. The first time I took Levadopa  nothing happened. That was about a year ago. I was on my initial dose over the weekend — three pills a day.  I went on line and found a short video on YouTube on how to take the meds.   I tried the empty stomach routine and within a day or so I noticed no sticking to the floor—improvement with tremor and overall improvement. I’ve been using this method for over a year now. I can cheat a little bit but too much protein or sugar  too close  makes symptoms come back when not giving enough time digest my food in between doses. 

[Victoria Tamorria]

I take it on an empty stomach. I wait at least 1 hr to 1 and 1/2 hr before eating.