Forum Replies Created

  • nancy

    Member
    May 10, 2023 at 9:17 am in reply to: Inbrija new medication

    I have the Inbrijia kit and tried using it a couple of times.  I have come to the conclusion that it might work well for folks that are used to smoking.  I have never smoked and the Inbrijia does not work for me because all it does is make me cough.

  • nancy

    Member
    February 13, 2023 at 3:38 pm in reply to: Hair loss & peeling of the face

    I have  lost a lot of hair and experience skin peeling on my face.  I don’t think the cause is the disease itself, but rather from the Sinemet.

  • nancy

    Member
    September 16, 2022 at 8:47 am in reply to: What are your thoughts about Deep Brain Stimulation?

    Does anyone know why one has to take PD meds after they have had dbs?  Also, I learned from a webinar that they normally do not perform dbs on people that live alone because speech impairment and cognitive dysfunction is a side effect of the surgery.  Can anyone shed some light on this for me?

  • nancy

    Member
    March 22, 2022 at 3:35 pm in reply to: PD friendly recliner

    Hi Anne,

    I have had PD for 10 years and have had 2 lift recliners.  What I’ve discovered is that due to the motion of the chair, it slides around regardless if it is on cerpeting or a wooden floor.  This can be remedied by putting something under the base of the chair such as a rubberized mat commonly used for exercise machines.  The main thing that I look for in a lift chair is the type of remote it has – the type with buttons don’t last that long.  The oval-shaped remote with only an up and down button on it is more reliable.  This oval type is usually embedded into the chair.   Granted, lift chairs can be expensive.  I paid nearly $900 for mine but that included tax and a delivery charge.

     

     

     

     

     

     

     

     

     

     

     

  • nancy

    Member
    December 30, 2021 at 3:35 pm in reply to: Will you take the Covid-19 booster when it’s available?

    I have received the two vaccination shots and have been boosted also – all with Pfizer.  No bad reactions at all.

  • nancy

    Member
    November 23, 2021 at 3:21 pm in reply to: Where do you live?

    Southwest suburb of Chicago, IL

  • nancy

    Member
    September 17, 2022 at 9:50 am in reply to: What are your thoughts about Deep Brain Stimulation?

    Thank you for your quick response.  I am glad to hear from someone who knows more about dbs and will tell me things that my neurologist has not shared.  It seems like the drs. I have spoken with about dbs ‘gloss over’ the risks of the surgery but don’t tell you exactly what improvements would be realized by the surgery.  If the only benefit is reduced dyskinesia, I think I will pass on the surgery. The people that I’ve met and have had dbs surgery have a speech pattern that makes it very difficult to understand what they are saying even though their voice is loud enough.  To me, the risks of the surgery outweigh the potential rewards.

  • nancy

    Member
    July 15, 2022 at 9:36 am in reply to: What do you think is at the root of your Parkinson’s diagnosis?

    I was diagnosed with PD one month after my mother passed away.  If the trauma of losing my mother wasn’t bad enough, I had to endure the wrath of my sisters who refused to help take care of mom but they sure had their hand out when it was time to collect their share of the estate.

  • nancy

    Member
    April 7, 2022 at 11:11 am in reply to: Light therapy

    Have you received any positive results in treating parkinson’s symptoms from using the therapad?