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    • #26452
      JB
      Participant

        Hi everyone,
        If anyone has any information to share on taking Inbrija 33mg we would be interested to know as it is a medication being offered here in Europe but it’s very expensive.

        Side effects, good results or not, would love some feedback before we make a decision on going down this path.

        It’s a new Levadopa Inhalation Power in capsule form.

        Thanks JB

      • #26469
        Jorge
        Participant

          My Inbrija is 42MG and I have used it for several years with no issues and good results. It is a complement to my Rytary dosage 5x/day.

          It is a short term OFF time avoidance tool going right from inhaled lung to brain (vs gut to brain). It takes 5-10 min to kick in and has no limitation for food consumption unlike Rytary etc.  If you need to eat and get out the door in AM you can start with Inbrija.

          Like anything else, individual results may vary.  I am a 10 year  Parky and occasionally find myself forgetting my pill schedule while working outside and Inbrija will keep me from fading while Rytary slowly kicks in.  Hope this helps.

          • #26506
            JB
            Participant

              Interesting Jorge, the higher dose 42mg and the mix with Rytary. We can’t use Rytary as it’s not available but good to hear the Inbrija works well for you. Thanks.

              • #26595
                timothy ross
                Participant

                  It is not a higher dose, rather the 42mg presentation of Inbrija contains 33mg of Levodopa. A mite confusing.

                • #26598
                  JB
                  Participant

                    Thanks Timothy….. Didn’t realise that.

              • #26472
                nancy
                Participant

                  I have the Inbrijia kit and tried using it a couple of times.  I have come to the conclusion that it might work well for folks that are used to smoking.  I have never smoked and the Inbrijia does not work for me because all it does is make me cough.

                  • #26505
                    JB
                    Participant

                      Thanks Nancy, interesting to read re the coughing. It’s something my husband was concerned about as well, inhaling powder into the lungs…

                  • #26586
                    Steve
                    Participant

                      I found it really didn’t have the effect I wanted. Also, it is really uncomfortable inhaling powder, making me cough quite alot following treatment. I no longer use it, it just didn’t seems worth it.

                      • #26599
                        JB
                        Participant

                          We have pretty much decided against it because of price and the inhaling…

                      • #26596
                        timothy ross
                        Participant

                          Inbrija was recently approved for use here in Spain, but I do not know if it is available in the public health system. I do hope so: I have a terribly dysphoric down when each dose of Sinemet fades, an hour or more before it is time for the next one. I have a neurology appointment on June 9th and may be able to find out.

                          • #26600
                            JB
                            Participant

                              It is available here in Spain yes, but from what we found out being on the Public health system, it’s not discounted so very expensive. Too expensive for us to bother with on top of the inhalation which my husband really doesn’t want to do. The Farmacia here wanted 1200 Euro for 60 tablets.

                          • #26601
                            Steve Lloyd-Davies
                            Participant

                              I tried samples of this a couple of  years ago. The inhaled powder irritated my bronchial passages and caused intense coughing, which led to development of a bout of acute bronchitis which I could not clear without antibiotics. It may work for some patients, but did not work for me.

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