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Gail Dons

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@mamaggg

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    Gail Dons replied to the topic How has your life changed since undergoing Deep Brain Stimulation? Are you glad you had the surgery? in the forum Living ​With​ ​Parkinson's Disease 2 months ago

    Your words are encouraging, friends. I had R GPi DBS almost 2 weeks ago, and the L side is scheduled later in Feb. I am still in the “honeymoon” period and have not started any programming yet. Other than a simply HIDEOUS reaction to the adhesive on the surgical drapes, I found the initial 6 hr procedure rather entertaining (except the part whe…[Read more]

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    Gail Dons replied to the topic How has your life changed since undergoing Deep Brain Stimulation? Are you glad you had the surgery? in the forum Living ​With​ ​Parkinson's Disease 2 months ago

    Your words are encouraging, friends. I had R GPi DBS almost 2 weeks ago, and the L side is scheduled later in Feb. I am still in the “honeymoon” period and have not started any programming yet. Other than a simply HIDEOUS reaction to the adhesive on the surgical drapes, I found the initial 6 hr procedure rather entertaining (except the part whe…[Read more]

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    Gail Dons replied to the topic Gut bacteria identified in UF study in the forum Parkinson’s Research News 1 year, 10 months ago

    let’s not get too crazy yet About commercial got bacteria products!. These studies only showed that certain bacteria caused abnormal neurodegenerative proteins to build up in the worm C Elegans. A warm intestine is rather different from a human intestine. There may be bacteria that are just as helpful or harmful in humans, but they may be d…[Read more]

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    Gail Dons's profile was updated 2 years, 2 months ago

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    Gail Dons replied to the topic Faith in the face of adversity in the forum Living ​With​ ​Parkinson's Disease 2 years, 3 months ago

    God promised us that He would only give us what was best for us. I have lived long enough to see how what appeared to be a really bad time was used to strengthen me for future things that came into my life. We don’t always get to see that connection, but we know we can trust Him.  Sometimes I’m really disappointed, or even shocked when His way…[Read more]

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    Gail Dons replied to the topic How often do you consult Dr. Google? in the forum Parkinson's Disease Symptoms 2 years, 3 months ago

    Remember, Dr Google never went to medical school…!

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    Gail Dons replied to the topic Swelling in the forum Parkinson's Disease Symptoms 2 years, 8 months ago

    …and it is hypothyroid people who are more likely to have swelling than those with an overactive thyroid.

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    Gail Dons replied to the topic Swelling in the forum Parkinson's Disease Symptoms 2 years, 8 months ago

    My feet swell every day, more in warm weather than in cold. It is because I have lousy blood flow in my legs – part of which are the doggone varicose vein’s my kids gave me when I carried them!
    Swelling in the legs can come from many things: lousy circulation like mine, thyroid conditionS, certain heart conditions, etc. If this is a new thing, y…[Read more]

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    Gail Dons replied to the topic No pharmaceutical drugs? in the forum Parkinson's Disease alternative treatments 2 years, 9 months ago

    Agree with Andrew. It depends so much on how much functional substantial nigra you have and how slowly it deteriorates.  Exercise, diet, and natural supplements may help. I did not immediately start on levodopa when I was diagnosed. Eventually I found out that I functioned more consistently with a small dose. (I could exercise more safely and…[Read more]

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    Gail Dons replied to the topic CRISPR GENE THERAPY ! What do you know ? is it hope ? in the forum Parkinson's Disease alternative treatments 2 years, 10 months ago

    When it comes to gene therapy, it’s usefulness in Parkinsons will depend on what you do with it. If you use it to make cells produce dopamine, that is already being done (see 5/25/20 article inn Parkinsons News T…[Read more]

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    Gail Dons replied to the topic Constipation Treatments in the forum Living ​With​ ​Parkinson's Disease 3 years ago

    Mary Beth,

    Hydration is a great place to start, because it has to be a part of ANY constipation treatment regime.  Traditionally, good bowel function is made up of fiber, fluids and exercise. It’s sort of like a three-legged stool: do without one of these and the whole thing falls over. For some PwPs, having a properly balanced 3-legged stool is…[Read more]

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    Gail Dons replied to the topic Constipation Treatments in the forum Living ​With​ ​Parkinson's Disease 3 years ago

    My personal record in the constipation department was 2 weeks with no action.  Miralax, Dulcolax tablets,  Magnesium Citrate…nothing worked. I eat plenty of fiber. I exercise. I thought I was getting adequate fluids because my urine was usually very pale/clear. Then one day I realized that a large proportion of fluid intake was caffeinated. C…[Read more]

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    Gail Dons replied to the topic Late Day Levodopa/Carbidopa Does Not Working in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 1 month ago

    The Parkinsons Foundation has a good booklet on diet and Parkinsons. “Nutrition Matters” Here is an excerpt”
    <p class=”p1″><span class=”s1″>“Protein in the meal is broken down in the intestine into amino acids. These aminos must travel across the intestinal wall to get into the blood. Then they must cross the blood-brain barrier to enter the brai…[Read more]

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    Gail Dons replied to the topic Wondering About Azilect? in the forum Using our forums 3 years, 1 month ago

    I have been on Azilect for 6+ years. I have not changed my diet. I  eat salami, sauerkraut, cheese, drink caffeinated beverages and wine as usual (OK, I’m not a big wine drinker, but I do like my cheese!) I have had no problems. Mike P is correct about Azilect being a selective MAO-B inhibitor and any dietary interactions are not as prominent. How…[Read more]

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    Gail Dons replied to the topic Your Amantadine Experience? in the forum Parkinson's Disease alternative treatments 3 years, 1 month ago

    Hi Cemal!

    I have never been on Amantadine, but, like you, I started my PD journey with Azilect. I didn’t see a whole lot of difference except I would occasionally notice my R arm was swinging all by itself when I walked, and I stumbled less. After about 9 mos, my neurologist advised I add Levo/Carbidopa. Also like you, I was very resistant,to th…[Read more]

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    Gail Dons replied to the topic Wondering About Azilect? in the forum Using our forums 3 years, 1 month ago

    A number of years ago, a study was done that implied that 1mg/day of rasagiline(Azilect) slowed the progression of PD. Everyone was excited. Then a study was done with 2mg/day – and it did not show any slowing of disease progress. THat said, when I became a PwP, I wanted to take Azilect 1 mg – just ic case it really was a little neuroprotection. I…[Read more]

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    Gail Dons replied to the topic Cannabis and Parkinson's in the forum Parkinson's Disease alternative treatments 3 years, 2 months ago

    I can’t speak to economics, but you know there will be price gouging when someone is selling something that gives other people a “high”. It is exactly the same thing “big pharma” does. In reality, both only demonstrate one of the unfortunate qualities of human nature that we all share. Pharma isn’t the only bad guy – it’s in all of us.

    For thos…[Read more]

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    Gail Dons replied to the topic Cannabis and Parkinson's in the forum Parkinson's Disease alternative treatments 3 years, 2 months ago

    Your safest bet is a medication (pharmacological or naturopathic) that not only works, but has been produced so that you get the exact same bioactive component in each dose, and has been tested to see what the safe dose range is, and also evaluated for both long and short term side effects, as well as interactions with other medications.…[Read more]

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    Gail Dons replied to the topic Are you participating in any clinical trials? in the forum Parkinson's Disease alternative treatments 3 years, 2 months ago

    Ohmygoodness! Just had so much fun doing a clinical trial this week. They are writing a grant to evaluate the use of exoskeletons in gait training. I got fitted for a very compact single joint exoskeleton and then walked around forward and backward, up stairs, etc, while the exoskeleton boosted my hip flexors so I lifted my knee higher and…[Read more]

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    Gail Dons replied to the topic Are you participating in any clinical trials? in the forum Parkinson's Disease alternative treatments 3 years, 2 months ago

    Deborah is right, the Michael J Fox TrailFinders is a good place to look for clinical studies. Also, if you have any medical schools in your area, often on their website there will be a link to the various clinical trials they are running. You usually can search by disease or condition.
    I am in Chicago, and both Northwestern and Shirley Ryan…[Read more]

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