J. Gottlob
Forum Replies Created
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<p style=”text-align: right;”>Had Boston science installed 7/2020, surgery went fine until my brain on the right slumped and they missed the sweet spot</p>
<p style=”text-align: center;”>New Neutologist wonders why I had it done. Sa y s I would not have been a candidate for it. So…</p> -
Had Boston science installed 7/2020, surgery went fine until my brain on the right slumped and they missed the sweet spot
<p style=”text-align: center;”>New Neutologist wonders why I had it done. Sa y s I would not have been a candidate for it. So…</p> -
I had bi-lateral DBA in July of 2020. I have since moved to another state for better health care. my new neurologist questioned why- I had gotten it and that one of the leads wasn’t located in the correct spot. My old neurologist oversold the results. My problems are gait and balance., which DBS doesn’t address so I did not gain any super powers.
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I sleep with a weighted blanket pretty much year round ( in Michigan ) with no problem. It is the heat outside that gets me.
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I get very weak and I can’t walk.
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I get very weak and I can’t walk.
W
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Yes, I worry and do fall, at least twice a day. I don’t know if my left knee will ever heal up.
I use a 4 footed cane, which helps. That and keeping up on my C/L along with my caffeine level. Focusing on walking, taking big steps, and resetting when I freeze up all help.
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RSB is fantastic!! I have been going since it started here in Helena, MT and it is amazing how much it helps and comradery that you come to have with the other people who go.
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It took over a year to be diagnosed with PD. My first symptom was my left heel dragging on the carpet at work. I tried a different pair of shoes. Same result.
So I went to the chiropractor, because my hip had gone out before and I thought maybe that was it. After a couple months of adjustment, xrays and traction, I was still no better. That doc suggested an MRI of my neck and to see a spinal surgeon. Got the MRI and went to the surgeon. I wasn’t impressed with him, so I scheduled an appointment with a neurosurgeon.
He examined me and said he thought it was in my head. So I had a brain MRI with reflection and no issues were found. He referred me to another neurologist and this doc did a EMG test on my whole body and didn’t see anything majorly wrong. He thought maybe I had a stroke. The PD was only affecting my left side – leg/arm/hand, but no tremor.
So my PCP had one patient who was having strokes due to a heart condition, which 18% of the population does. He referred me to a cardiologist, who did a echocardiogram, both external and down the throat. Result – yes the flap between the two top chambers of my heart isn’t sealed, but he didn’t think that was the issue. The brain MRI would has showed if I had a stroke or not….They also checked the arteries in my neck for blockage, which there wasn’t any.
So at this point, now what? I had MRIs from my brain to my butt, no conclusion. Met with multiple doctors, no conclusion. But after several months, I developed a tremor in my left pinky.
My PCP referred me to another neurologist who told me that he knew by looking at me when he first met me that I have PD. The stone face and non-blinking were his first clues, all backed by his testing.
So it isn’t always quick.