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    • #14907
      Ally
      Keymaster

      What was your earliest symptom of Parkinson’s disease? Did you talk to your doctor about it right away, or did you wait awhile? Did you immediately suspect it was PD or was hearing your diagnosis a surprise to you?

    • #14908
      Bob Hodgson
      Participant

      My earliest symptoms were an occasional left thumb tremor. My primary care doctor told me to cut back on the amount of coffee I drink! Love the compassionate health care system. Four years or so later I noticed the tremors were more frequent and had traveled to my right side this was combined with smaller handwriting and “heavy legs”. I decided to see a neurologist who specialized in movement disorders who confirmed my suspicions. His confirmation was I have good and bad news, the good news is what you have won’t kill you and the bad news is you have Parkinson’s. First and last visit to this doctor.

      • #14909
        Ally
        Keymaster

        Thanks for sharing your experience, Bob. Those responses from the doctors are interesting to say the least. Are you working with a different neurologist now? Are you still with the same primary care physician?

    • #14910
      Bob Hodgson
      Participant

      I have been blessed to have been working with two of the kindest and compassionate neurologists over the past four years. My current neurologist is the one who suggested that I run for exercise. I would give out their names but I’m not sure if that violates any forum rules.

      • #14911
        Jean Mellano
        Keymaster

        Hi Bob, where are you located?  I would love to know the names of your neuros.  You can private msg me with that info.

      • #14918
        Ally
        Keymaster

        I’m happy to hear you’re being well cared for! 🙂

    • #15446
      Mike P
      Participant

      I began to have frustrating symptoms at least 6 years prior to diagnosis when I was 37 years old. When pitching to my son I noticed that I could throw a few buckets and then I would get the yips and would lose all accuracy. I chalked it up to some type of shoulder injury as my shoulder was often stiff.

      Other ongoing right arm issues included quick fatigue in my forearm and hand. If I was assembling something that required the use of a screwdriver for more than a minute or two my forearm would get exhausted. I’m a computer programmer by trade and never had the best ergonomic setup. I suspected I had some carpal tunnel issues that explained the arm fatigue.

      Another symptom I had no idea was related to the others was right foot cramping (dystonia) that only happened during runs. I figured this was some type of plantar fasciitis.

      The final symptom that sent me to the doctor was an occasional very slight cogwheel ratcheting in my right wrist when using an eating utensil. When I casually mentioned the ratcheting to my healthcare professional mother, and she saw it for herself, she encouraged me to go see a doctor as soon as possible.

      I told my doctor I had a bunch of nagging injuries piling up and mentioned my injury symptoms. I rated them as annoying but explained that none of them were debilitating.  I asked my GP if he thought an MRI of my right arm and shoulder was appropriate. My GP referred me to a MDS neurologist just to cover all the bases. It took me 4 months to get an appointment. To a trained neurologist, my bradykinesia, dystonia, and rigidity limited to the right side had a much more likely explanation.

      However, I do consider myself fortunate to have a fast path to a first opinion diagnosis where all visits and tests were covered by insurance.

    • #15466
      Jean Mellano
      Keymaster

      mike, my left side is affected much more than my right.  i am thankful for that as i am right side dominant.  also, it was my primary care doctor who sent me to a neurologist when i told her my handwriting had become small and illegible

    • #15468
      Jean Mellano
      Keymaster

      Yes, it is no wonder a cure has not been found..

    • #15469
      Jean Mellano
      Keymaster

      Yes, it is no wonder a cure has not been found..

    • #15471
      Andrew L.
      Participant

      Left arm tremor (went away). Near frozen left shoulder. Went to ortho who wanted to operate on partially torn muscle in that shoulder (fortunately got 2nd opinion, no surgery, had P.T. but in retrospect am pretty sure this was Parkinson’s.). Stiffness in neck and hips. Finally left leg tremor, then diagnosed. Was told same thing by first neurologist..bad news is you have Parkinson’s . Good news is you will probably die with it, not from it. Also told I had a 100% chance of ending up with senile dementia (sorry I asked), even though my cognitive functioning was/is  100% normal. Now am in much better hands, and a bit more optimistic.

      • This reply was modified 2 months, 1 week ago by Andrew L..
    • #15467
      Mike P
      Participant

      Jean-

      My symptoms are limited to my dominant right side. It’s interesting how every person’s symptoms and response to meds is completely unique.

    • #15476
      Jean Mellano
      Keymaster

      Andrew, I am glad you got a second opinion and avoided surgery! And I hate that bad news/good news comment.  acceptance, optimism and living in the moment will be our saving grace

    • #15984
      Mick
      Participant

      Posture (and resulting back pain) generated a lot of money for the Drs. MRIs, CAT scans, all with no suggestions for treatment. A news story, someone famous with PD caused me to do the research myself and ask the Dr directly. (I had 5-6 very slight other symptoms, forget which) When I mentioned them he said “walk over there and back–Yep you have PD”

    • #15997
      Jean Mellano
      Keymaster

      mick, it seems that is the nature of this disease, so many different symptoms that overlap with other maladies and not consistent by individual.  was the doc that finally diagnosed you a movement disorder specialist?

    • #16084
      Yaman Kahveci
      Participant

      Hey,

      My first symptoms were shaken hands and running indirectly in the room

      After that i slept at the hospital for about one month, meanwhile i had no shaken hands even more i wasn’t running 😅

       

      But i started losing my voice and my movements has been very slow

      I even couldn’t walk in the first month afterwards i attended a physiotherapy sessions so i could walk but still my movements are very slow

      Forgot to mention that I’m only 26 years old

      • #16085
        Jean Mellano
        Keymaster

        Yaman

        you you are so young!  I am 65 and most people I know with pd are 50-75.    I believe movement is so important and I hope u can find some activities especially for people with PD like boxing,yoga,tai chi…

      • #16086
        Jean Mellano
        Keymaster

        Yaman

        you you are so young!  I am 65 and most people I know with pd are 50-75.    I believe movement is so important and I hope u can find some activities especially for people with PD like boxing,yoga,tai chi…

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