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Have you tried any alternative treatments?
Have you tried alternative or complementary treatments such as acupuncture, massage, or tai chi?
Did they help with your symptoms or overall well-being?
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33 Replies
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Hi I tried Acupuncture, it’s expensive but, unfortunately it doesn’t work for me and he is not in the network of my insurance co., so all the money down to the drain. Sorry.
CP
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Blue light therapy helps with my sleep problems. I’ve been doing it an hour a day for about a year. No ill effects that I have noticed.
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I’ve been thinking about trying that, myself. How long have you been doing blue light therapy?
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I think that alternative options are not bad, as long as they have a good effect on the person.
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Have a look at zhittya regenerative medicine I have been on a research trial for 2 years and it’s definitely helping me
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I’ve been reading about this.How can I apply for the trials?
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Hi Charles,
What are/were your symptoms and how has zhittya helped?
Thanks
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Hi, that’s very interesting You’re in a trial with them. I have been following them for years, but I can’t afford the treatment however a trial would be great. What is the treatment your receiving that’s working? Is it possible to still get involved in this trial?? Are they charging you at all? Please share thank you.!!
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Also, sorry to bother you, but I meant to ask you, is the treatment some form of protein and is it administered intranasally? Thank you so much again!
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I found that Sativa strain helps and I’ve been able to dramatically reduce my carbodopa/levodopa script for tremors. I find 5-10mg every 4 hrs works for reducing the tremors.
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Hi, I just recently retired so I can try CBD and THC but I got my medical marijuana license and tried it and it seems to exacerbate my condition including tremors. I thought that was not the calming CBD? I actually bought some but I’m afraid to use it because I don’t need to be any more anxious. But you say sativa helps you with your tremors? Do you take the gummy’s? How many times do you take it in one day? You said every four hours correct? Thank you so much.
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Hello, 5-10mg of Sativa doesn’t make you “high” ? If we are talking about the same thing, I was kind of zombie-like and foggy with one dose of an edible gummy. No way I could that every 4 hours and function properly too. Are you speaking of something else other than edibles? Thanks!
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I also tried acupuncture. Didn’t work,.made my FOG worse.
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I feel the same. Unfortunately.
Christine
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Acupuncture helped me relax watching away helped symptoms because tension was a big thing with my symptoms. Other than that, I haven’t tried much other. I try to keep open mind about different methods.
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I can relate to what you said about tension being a big part of your symptoms, same here. I haven’t tried acupuncture but I’ve noticed that anything that helps me relax, breathing exercises, or even just listening to calming music, can sometimes make a difference. It’s interesting how stress seems to make everything worse. I’m still figuring out what works best, but like you, I try to stay open to different approaches too.
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I am just diagnosed last Fall and have been trying a lot of different supplements as well as red light therapy, massage, GLP1, probiotics, and hyperbaric oxygen. I actually just got back from Germany where I had stem cells harvested to start Secretome therapy next month. I also had MRI guided focused ultrasound treatment of my right hand tremor with 90-95% tremor reduction for the last 3 months at Mayo.
So far the MRI guided focused ultrasound did the best. Massage is great! Red light therapy seems to help. GLP 1 has likely helped a lot. Hyperbaric oxygen seems to help especially with stamina when I exercise which I do a lot of.
Secretome seems to be very promising. I have the choice of getting it either IV or intrathecal. I am thinking IV first.
The thing is every case of Parkinsons seems to have its own unique course, so what works for me may not work for others….. I am also well to do enough to try these things. I am happy to report my experiences, but everyone is different and has a different medical history so do your own due diligence before trying anything out much less what a guy is saying on a bulletin board like this. Gives you a lot to talk about with your own doctor though!
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Hi. Thank you for sharing your findings, that’s very interesting.
Mike
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I took a part in a clinical study last year at UCLA. It was Low Intensity Focused Ultrasound that targets an area of the brain responsible for producing tremors. It definitely had a positive effect on my tremors but for a short period of time, a couple of days. Then it went away. This solution doesn’t fry your brain but disrupts tremor controlling mechanism. They said there will be a second phase of this study next year.
I’m saying it because I guess there is always something new being tried out there that you could participate in. Check this site for potential trails, you may get something promising to take a part in. https://www.clinicaltrials.gov
I almost got into this study but apparently I’m not where they want you to be for consideration.
Good luck everyone. Stay positive and don’t lose hope.
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A close friend of mine with Parkinson’s tried acupuncture and said it helped ease some of her muscle tension, even if just for a little while. She also does gentle massage regularly, which seems to relax her and improve sleep. Tai chi helped her balance a lot too. She combines these with her meds, and sometimes even looks into options like Get Mounjaro Online for additional support.
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We are using Amino Acid Therapy through a naturopathic Dr. It is amazing! It is so sad to read what all of you are going through. We were there 2 1/2 years ago until I did research and found our Dr. Almost all symptoms have been reversed! Drooling, left leg shuffling, blank stares and of course the most common, trembling arm and hand. I’ve written about it many times on this board. We were skeptical, but took the chance. So glad we did. My husband is back to normal, except for a slight tremor now and then when he’s excited about something…working on his car, or crazy traffic. His mind is clear, he’s focused. We exercise regularly, ride e-bikes and motorcycles. His neurologist is amazed. This treatment is 20+ years in the making and participants are all doing well. When people say there is no cure or no remission, I am here to tell you otherwise. Do your homework!! Be your own advocate. Research. There are ways beyond taking the normal medications.
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Has anyone else tried Amino Acid Therapy and if so, what were the results?
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Shaun, when did you start the therapy and what symptoms have improved? Have there been any side effects?
Thanks
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Hi Geo! My husband has been doing the therapy since May 2023. He started with a very shaky hand and arm, left leg was shuffling and he was drooling and had blank stare moments. Once we did an assessment with Dr Chad Oler, we began the program. The only side effect he has experienced is some nausea, but with trial and error, spreading out the timing of taking the pills and powder, he has settled in to a routine and has managed it by eating snacks when he takes the supplements. You have to be committed to this and follow it religiously for the rest of your life, but it is so worth having your quality of life back. He stopped drinking all alcohol (which wasn’t much to begin with), exercises regularly, and eats a good healthy diet. Dr Chad is very committed and worked with us starting with a couple of times a week, checking on dosages and symptoms as we went. We noticed results in the first month and things progressively got better as he tweaked the dosage and listened to all the symptoms and how my husband was responding. By 9 months, we were pretty much symptom free and just kept tweaking the dosage in minute ways til we got to a steady place. It’s described as kind of like filling a cup, and finding how much it takes to keep that cup full to where the symptoms are tamed. It was the best decision we ever made to try this. He has treated many people and this therapy has been around for awhile, but most people aren’t aware of it. It is also not cheap to do, but once you get settled in your ‘happy place’ things settle down and instead of weekly assessments, you go to monthly, then every 3 months, then 6 months, staying checked in to make sure all is still going well. Dr Chad always answers our emails if we have questions, and he takes your whole health into account as he works with you. I hope he can help you as well! I am happy to answer any other questions you may have. If you go to his website, you can read more about the amino acid therapy for Parkinson’s.
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I’ve been using mybrainrestorecom it uses the seed from a Chinese fruit, but not well known in the United States Prepared in a way different way And cured 100% of mice with Parkinson’s Alzheimer’s and dementia Now I’m no mouse, but I joined the mice and started taking it in January Went from stage one to stage three And my Alzheimer’s is all but diminished I think it’s extremely rare to find anything that reverses three neurological disease no admittedly the university was trying to figure out how to make it a $10,000 a month product But they were unable to figure out what exactly was workingso I’m thinking why not just take the natural supplement but it just had to be made in a special way and that’s the only place you can get it right now You can download the book by the author if on the website you click FAQ free PDFs. It’s in ebook or PDF. Can’t beat free. How it works is a bit unclear, but the scientist did say when they dissected those mice that all the plaque and tendrils were gone. But it took me six months and I’m not gonna stop taking it just because I got a whole lot better I don’t one to two neurological conditions I had back.
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that should say I went from stage three Parkinson’s the stage one taking mybrainrestore.com G I mess that up anyway a lot of people are having success with it. All I can say is go to the website. Read everything they have especially the FAQs. The products also supposed to be on Amazon in about 30 days so it’s definitely new and different. But cheaper on the website, you can also download the book for free that’s a companion book. Just go to the FAQ click on free PDFs and pick what format you want PDF or E pub
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Hello, When you are taking the brain powder, 2 scoops per day, did you also doing some exercises? If you did, what kind of exercises you do to help you to improve your condition? Thank you.
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No, I did not do any exercise, but I did talk to someone else who uses the product that mybrainrestore.com He’s actually a retired doctor, and he does exercise and noticed that after about 60 days of taking the product, he was able to do more physical exercise than before, which really impressed him. I mean, it’s always hard to impress the doctor, right?
For me, I Tripping into things or falling, so that’s when I decided to sign up for the Michael J. Fox Marathon in June 2025 I know my wife thought I’d fall down and really hurt myself, but I felt totally different Even though I never ran before and never jogged But I did complete that race got a For one of the Parkinson’s patients that actually could run the event themselves. But since that time I’ve been pretty active, I can go up and down ladders work on the house things I could not do before So it definitely works, but I’m not sure if anyone knows how. I’m trying to get my neurologist to do more advanced tests that they had already done Medically, I was showing different in the test but their attitude today as well. You took the test and you failed It doesn’t get better But even they admit my tremors were gone.
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For sleeping, My husband tried medical marijuana & it did not help.
He recently tried reiki for sleeping. So far, it’s helping.
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I can’t say the regular marijuana makes you sleep. What I found was a product called comfortably numb. By 3CHI. Same name as their website. The best version is
True Strains Gummies – Comfortably Numb
Now one gummy of that and after a few hours, I am totally asleep and may not wake up until noon. It doesn’t really have any effect to make you higher or anything, but did you get a good night and almost to noon sleep
I take one full gummy, but they recommend starting off with only a quarter Find where you’re comfortable These are custom blended for particular Situation situations They make a lot of different ones But I bought it because I have trouble sleeping or I wake up and then I can’t get back to sleep With this, even if you wake up, you get back to sleep.
Do not operate machinery drive a car the next day Makes you tired But for me, it doesn’t cause any euphoria which is fine. I’m just trying to sleep
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I’m interested in ibogaine. Has anyone tried it and how long does the effect last?
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I’m not sure it’s exactly legal in the United States Check out Wikipedia they have it listed as illegal It is derived from my plant and has hallucinogenic Properties and can actually cause tremors
I went with a natural plant-based supplement at mybrainrestore.com No reported major side effects at all, but I went from stage three Parkinson’s the stage 1. So that’s pretty dramatic An in a Japan university study using my models that had Parkinson’s Alzheimer’s and dementia it cured them all 100 Percent That was sufficient enough for me to become one of mice. It’s a ground seed of a fruit, but not a fruit found in the United States. But at least this company has it and ships free
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Has anyone tried the SYMBYX PDLaser Or Neuro helmet?
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