Have you tried any alternative treatments?

[christine-p]

Hi I tried Acupuncture, it’s expensive but, unfortunately it doesn’t work for me and he is not in the network of my insurance co., so all the money down to the drain. Sorry.

CP

[sofibrown]

I think that alternative options are not bad, as long as they have a good effect on the person.

[Charles barclay]

Have a look at zhittya regenerative medicine I have been on a research trial for 2 years and it’s definitely helping me

[PRobb]

I’ve been reading about this.How can I apply for the trials?

[Geo]

Hi Charles,

What are/were your symptoms and how has zhittya helped?

Thanks

[shiloh]

Hi, that’s very interesting You’re in a trial with them. I have been following them for years, but I can’t afford the treatment however a trial would be great. What is the treatment your receiving that’s working? Is it possible to still get involved in this trial?? Are they charging you at all? Please share thank you.!!

[shiloh]

Also, sorry to bother you, but I meant to ask you, is the treatment some form of protein and is it administered intranasally? Thank you so much again!

[Shawn]

I found that Sativa strain helps and I’ve been able to dramatically reduce my carbodopa/levodopa script for tremors. I find 5-10mg every 4 hrs works for reducing the tremors.

[shiloh]

Hi, I just recently retired so I can try CBD and THC but I got my medical marijuana license and tried it and it seems to exacerbate my condition including tremors. I thought that was not the calming CBD? I actually bought some but I’m afraid to use it because I don’t need to be any more anxious. But you say sativa helps you with your tremors? Do you take the gummy’s? How many times do you take it in one day? You said every four hours correct? Thank you so much.

[Msb777]

Hello, 5-10mg of Sativa doesn’t make you “high” ? If we are talking about the same thing, I was kind of zombie-like and foggy with one dose of an edible gummy. No way I could that every 4 hours and function properly too. Are you speaking of something else other than edibles? Thanks!

[Tom]

I also tried acupuncture. Didn’t work,.made my FOG worse.

[christine-p]

I feel the same. Unfortunately.

Christine

[Karla]

Acupuncture helped me relax watching away helped symptoms because tension was a big thing with my symptoms. Other than that, I haven’t tried much other. I try to keep open mind about different methods.

[pauleven]

I can relate to what you said about tension being a big part of your symptoms, same here. I haven’t tried acupuncture but I’ve noticed that anything that helps me relax, breathing exercises, or even just listening to calming music, can sometimes make a difference. It’s interesting how stress seems to make everything worse. I’m still figuring out what works best, but like you, I try to stay open to different approaches too.

[tlcmd]

I am just diagnosed last Fall and have been trying a lot of different supplements as well as red light therapy, massage, GLP1, probiotics, and hyperbaric oxygen. I actually just got back from Germany where I had stem cells harvested to start Secretome therapy next month. I also had MRI guided focused ultrasound treatment of my right hand tremor with 90-95% tremor reduction for the last 3 months at Mayo.

So far the MRI guided focused ultrasound did the best. Massage is great! Red light therapy seems to help. GLP 1 has likely helped a lot. Hyperbaric oxygen seems to help especially with stamina when I exercise which I do a lot of.

Secretome seems to be very promising. I have the choice of getting it either IV or intrathecal. I am thinking IV first.

The thing is every case of Parkinsons seems to have its own unique course, so what works for me may not work for others….. I am also well to do enough to try these things. I am happy to report my experiences, but everyone is different and has a different medical history so do your own due diligence before trying anything out much less what a guy is saying on a bulletin board like this. Gives you a lot to talk about with your own doctor though!

[Msb777]

Hi. Thank you for sharing your findings, that’s very interesting.

Mike