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Have you tried any alternative treatments?
Have you tried alternative or complementary treatments such as acupuncture, massage, or tai chi?
Did they help with your symptoms or overall well-being?
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35 Replies
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Hi I tried Acupuncture, it’s expensive but, unfortunately it doesn’t work for me and he is not in the network of my insurance co., so all the money down to the drain. Sorry.
CP
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Blue light therapy helps with my sleep problems. I’ve been doing it an hour a day for about a year. No ill effects that I have noticed.
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I’ve been thinking about trying that, myself. How long have you been doing blue light therapy?
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I was in a 6 month trial with blue light therapy. The company is Photo Pharmics, trial might be still going on, I’m not sure. After that I bought a $50 blue light on Amazon, it works ok but I think it is missing some wave lengths I had in the original light. About 1 year total with the blue light, one hour every day. I haven’t found much data on blue light therapy, was a little worried about safety so I went to a opthamologist recently and she said my retinas look ok.
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HI Mike, Please tell us more about your blue light therapy. Where did you get your light? What kind is it? How to use it? Does anyone know of a trial going on now that one could join?
Thanks
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I was in a 6 month trial sponsored by a company “PhotoPharmics” out of Utah. Not sure if they are still running the trial. They insisted I return the light after 6 mos so I went on Amazon and searched Blue Light Device and found a $50 light. It was all I could find and I have been using it for 8 mos and it does help but not as good as the light in the trial. With any light therapy, it’s all about the wave lengths and Photo Pharmics would not give me any wave length info. PhotoPharmics expects to have their light commercially available late 2026. I use my light one hour every day in late afternoon.
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I think that alternative options are not bad, as long as they have a good effect on the person.
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Have a look at zhittya regenerative medicine I have been on a research trial for 2 years and it’s definitely helping me
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I’ve been reading about this.How can I apply for the trials?
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Hi Charles,
What are/were your symptoms and how has zhittya helped?
Thanks
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Hi, that’s very interesting You’re in a trial with them. I have been following them for years, but I can’t afford the treatment however a trial would be great. What is the treatment your receiving that’s working? Is it possible to still get involved in this trial?? Are they charging you at all? Please share thank you.!!
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Also, sorry to bother you, but I meant to ask you, is the treatment some form of protein and is it administered intranasally? Thank you so much again!
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I found that Sativa strain helps and I’ve been able to dramatically reduce my carbodopa/levodopa script for tremors. I find 5-10mg every 4 hrs works for reducing the tremors.
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Hi, I just recently retired so I can try CBD and THC but I got my medical marijuana license and tried it and it seems to exacerbate my condition including tremors. I thought that was not the calming CBD? I actually bought some but I’m afraid to use it because I don’t need to be any more anxious. But you say sativa helps you with your tremors? Do you take the gummy’s? How many times do you take it in one day? You said every four hours correct? Thank you so much.
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Hello, 5-10mg of Sativa doesn’t make you “high” ? If we are talking about the same thing, I was kind of zombie-like and foggy with one dose of an edible gummy. No way I could that every 4 hours and function properly too. Are you speaking of something else other than edibles? Thanks!
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I also tried acupuncture. Didn’t work,.made my FOG worse.
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I feel the same. Unfortunately.
Christine
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Acupuncture helped me relax watching away helped symptoms because tension was a big thing with my symptoms. Other than that, I haven’t tried much other. I try to keep open mind about different methods.
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I can relate to what you said about tension being a big part of your symptoms, same here. I haven’t tried acupuncture but I’ve noticed that anything that helps me relax, breathing exercises, or even just listening to calming music, can sometimes make a difference. It’s interesting how stress seems to make everything worse. I’m still figuring out what works best, but like you, I try to stay open to different approaches too.
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I am just diagnosed last Fall and have been trying a lot of different supplements as well as red light therapy, massage, GLP1, probiotics, and hyperbaric oxygen. I actually just got back from Germany where I had stem cells harvested to start Secretome therapy next month. I also had MRI guided focused ultrasound treatment of my right hand tremor with 90-95% tremor reduction for the last 3 months at Mayo.
So far the MRI guided focused ultrasound did the best. Massage is great! Red light therapy seems to help. GLP 1 has likely helped a lot. Hyperbaric oxygen seems to help especially with stamina when I exercise which I do a lot of.
Secretome seems to be very promising. I have the choice of getting it either IV or intrathecal. I am thinking IV first.
The thing is every case of Parkinsons seems to have its own unique course, so what works for me may not work for others….. I am also well to do enough to try these things. I am happy to report my experiences, but everyone is different and has a different medical history so do your own due diligence before trying anything out much less what a guy is saying on a bulletin board like this. Gives you a lot to talk about with your own doctor though!
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Hi. Thank you for sharing your findings, that’s very interesting.
Mike
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Please tell us about your red light therapy… what kind of light do you use, for how much time and how often, etc . What effect does it have on you?? Thanks
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I took a part in a clinical study last year at UCLA. It was Low Intensity Focused Ultrasound that targets an area of the brain responsible for producing tremors. It definitely had a positive effect on my tremors but for a short period of time, a couple of days. Then it went away. This solution doesn’t fry your brain but disrupts tremor controlling mechanism. They said there will be a second phase of this study next year.
I’m saying it because I guess there is always something new being tried out there that you could participate in. Check this site for potential trails, you may get something promising to take a part in. https://www.clinicaltrials.gov
I almost got into this study but apparently I’m not where they want you to be for consideration.
Good luck everyone. Stay positive and don’t lose hope.
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A close friend of mine with Parkinson’s tried acupuncture and said it helped ease some of her muscle tension, even if just for a little while. She also does gentle massage regularly, which seems to relax her and improve sleep. Tai chi helped her balance a lot too. She combines these with her meds, and sometimes even looks into options like Get Mounjaro Online for additional support.
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We are using Amino Acid Therapy through a naturopathic Dr. It is amazing! It is so sad to read what all of you are going through. We were there 2 1/2 years ago until I did research and found our Dr. Almost all symptoms have been reversed! Drooling, left leg shuffling, blank stares and of course the most common, trembling arm and hand. I’ve written about it many times on this board. We were skeptical, but took the chance. So glad we did. My husband is back to normal, except for a slight tremor now and then when he’s excited about something…working on his car, or crazy traffic. His mind is clear, he’s focused. We exercise regularly, ride e-bikes and motorcycles. His neurologist is amazed. This treatment is 20+ years in the making and participants are all doing well. When people say there is no cure or no remission, I am here to tell you otherwise. Do your homework!! Be your own advocate. Research. There are ways beyond taking the normal medications.
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Has anyone else tried Amino Acid Therapy and if so, what were the results?
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Shaun, when did you start the therapy and what symptoms have improved? Have there been any side effects?
Thanks
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Hi Geo! My husband has been doing the therapy since May 2023. He started with a very shaky hand and arm, left leg was shuffling and he was drooling and had blank stare moments. Once we did an assessment with Dr Chad Oler, we began the program. The only side effect he has experienced is some nausea, but with trial and error, spreading out the timing of taking the pills and powder, he has settled in to a routine and has managed it by eating snacks when he takes the supplements. You have to be committed to this and follow it religiously for the rest of your life, but it is so worth having your quality of life back. He stopped drinking all alcohol (which wasn’t much to begin with), exercises regularly, and eats a good healthy diet. Dr Chad is very committed and worked with us starting with a couple of times a week, checking on dosages and symptoms as we went. We noticed results in the first month and things progressively got better as he tweaked the dosage and listened to all the symptoms and how my husband was responding. By 9 months, we were pretty much symptom free and just kept tweaking the dosage in minute ways til we got to a steady place. It’s described as kind of like filling a cup, and finding how much it takes to keep that cup full to where the symptoms are tamed. It was the best decision we ever made to try this. He has treated many people and this therapy has been around for awhile, but most people aren’t aware of it. It is also not cheap to do, but once you get settled in your ‘happy place’ things settle down and instead of weekly assessments, you go to monthly, then every 3 months, then 6 months, staying checked in to make sure all is still going well. Dr Chad always answers our emails if we have questions, and he takes your whole health into account as he works with you. I hope he can help you as well! I am happy to answer any other questions you may have. If you go to his website, you can read more about the amino acid therapy for Parkinson’s.
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Shaun, May I talk with you personally??
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I’ve been using mybrainrestorecom it uses the seed from a Chinese fruit, but not well known in the United States Prepared in a way different way And cured 100% of mice with Parkinson’s Alzheimer’s and dementia Now I’m no mouse, but I joined the mice and started taking it in January Went from stage one to stage three And my Alzheimer’s is all but diminished I think it’s extremely rare to find anything that reverses three neurological disease no admittedly the university was trying to figure out how to make it a $10,000 a month product But they were unable to figure out what exactly was workingso I’m thinking why not just take the natural supplement but it just had to be made in a special way and that’s the only place you can get it right now You can download the book by the author if on the website you click FAQ free PDFs. It’s in ebook or PDF. Can’t beat free. How it works is a bit unclear, but the scientist did say when they dissected those mice that all the plaque and tendrils were gone. But it took me six months and I’m not gonna stop taking it just because I got a whole lot better I don’t one to two neurological conditions I had back.
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For sleeping, My husband tried medical marijuana & it did not help.
He recently tried reiki for sleeping. So far, it’s helping.
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I can’t say the regular marijuana makes you sleep. What I found was a product called comfortably numb. By 3CHI. Same name as their website. The best version is
True Strains Gummies – Comfortably Numb
Now one gummy of that and after a few hours, I am totally asleep and may not wake up until noon. It doesn’t really have any effect to make you higher or anything, but did you get a good night and almost to noon sleep
I take one full gummy, but they recommend starting off with only a quarter Find where you’re comfortable These are custom blended for particular Situation situations They make a lot of different ones But I bought it because I have trouble sleeping or I wake up and then I can’t get back to sleep With this, even if you wake up, you get back to sleep.
Do not operate machinery drive a car the next day Makes you tired But for me, it doesn’t cause any euphoria which is fine. I’m just trying to sleep
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I’m interested in ibogaine. Has anyone tried it and how long does the effect last?
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Has anyone tried the SYMBYX PDLaser Or Neuro helmet?
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Hello, When you are taking the brain powder, 2 scoops per day, did you also doing some exercises? If you did, what kind of exercises you do to help you to improve your condition? Thank you.
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