Mike P.

Yes, 5 yrs. Whether or not it was the right thing to do I’m not sure. Doc says I have typical tremor-dominant PD. Started in one hand and gradually went to other side and then the face. Other symptoms too, all the typical ones you read about. I’ve always been a vitamin user and still am, no PD vitamins really although I’m thinking about tryin…[Read more]

Hello Ron B, I’m 72, first tremors were 6 yrs ago. I started C/L 3 months ago. It’s the only PD med I’ve taken. I talked to 2 neurologists about holding off, neither were really much help. It’s a very personal decision and I would never give advice. Advice is worth what you pay for it, right? I’m retired and my days are not busy. For me, this summ…[Read more]

I’m 5 yrs into this thing and yes, sleep problems are very bothersome. 5 mg of Melatonin does help me some. I’m not against getting a prescription sleep aid if it gets worse. This method isn’t for everyone but I turn the TV on with volume real low and turn so I can’t see it. Helps stop my mind from racing.

William, Do you mind me asking…what was the side effect with Rytari? How would you compare it to regular Carbidopa/levodopa? Thank you.

They call it bladder urgency. I’ve learned to head towards the bathroom at first inkling of needing to go. I use benefiber with morning coffee along with Miralax later in the day. Both are sold at Costco. I think these 2 symptoms are pretty common with PD.

Alan, Did your doctor warn you about taking Sinemet with protein foods? My doc didn’t mention it, I brought it up.

I don’t take PD meds. I’ve noticed too that tremors stop as I approach sleep. My chiropractor said that the part of the brain from where tremors come shuts down during sleep. Haven’t discussed this with my neurologist. Don’t know what role, good or bad, melatonin plays in this.