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  • Do you sleep in the same bed as your person with Parkinson’s? Why or why not?

    Posted by Mary Beth Skylis on December 2, 2024 at 2:10 pm

    Nightmares can cause some Parkinson’s patients to act out their dreams, and flail while in bed, which can be dangerous for a partner. One solution is sleeping in different beds, but I know this doesn’t work for everyone.

    Do you sleep in the same bed as your person with Parkinson’s? Why or why not?



    Rob Stehlin replied 1 month ago 6 Members · 5 Replies
  • 5 Replies
  • linda92

    Member
    December 2, 2024 at 9:05 pm

    I do currently sleep with my spouse, who has PD. Almost every night he talks, yells, laughs, jerks, kicks, etc. I’m not sure we’ll always sleep together, but we do for now. He does not get out of bed during RBD episodes. I do usually nudge him/wake him if it’s aggressive or loud.

  • Alan M

    Member
    December 5, 2024 at 3:48 pm

    We used to. Not anymore. Her sleep aponia and my RBD tend to clash… we now sleep in separate rooms.

  • Karla Burkhart

    Member
    December 5, 2024 at 4:55 pm

    We no longer sleep in the same room, but it’s not because of my Parkinson’s. My husband has REM dysfunction and acts out his dreams. At times, he throws himself out of bed and can be quite violent. Because of that we sleep in separate rooms. At least he sleeps. I seem to toss and turn all night. I had an overnight sleep test and found that I did not have apnea, but I have very restless sleep.

  • dmcconnaughay

    Member
    December 19, 2024 at 8:43 pm

    We most definitely do (hard to imagine a time we won’t, at least not voluntarily). That’s just who we are. She has RBD but it is under control now (thankfully just an increase in Melatonin by her neurologist was all it took). Between our White German Shepherd and I, neither one of us wants her to suffer through those episodes alone and a soft touch by me and a nose poke by the dog wakes her quietly and helps calm her, and she (and us) simply go back to sleep.

  • Rob Stehlin

    Member
    December 26, 2024 at 2:17 pm

    I also have iRBD and was quite violent during events. For what it is worth, I have eliminated events with diet, suppliments and exercise. I would be glad to share my protocol with anyone. It works! It is cheap and it promotes a healthy lifestyle.

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