Rob Stehlin

Beth, Adam and Mary – do you have any root canals, teeth extracted or suffer from low level abscesses or infections associated with your teeth?

I just want to thank those that have taken my survey – you all are making a HUGE IMPACT.  Please share with others with PD.   We are going to make a difference.

Jean – I am working on just what might be the cause of PD in the majority of those with the disorder.  I will keep everyone updated on our findings.  You can help by taking our survey I have posted on this tread.   The solution will be discovered by those of us who suffer from this disorder.

Jean – I am working on just what might be the cause of PD in the majority of those with the disorder.  I will keep everyone updated on our findings.  You can help by taking our survey I have posted on this tread.   The solution will be discovered by those of us who suffer from this disorder.

I have been working this and have exact question -what could be the root cause or the starting point of PD and have found a high probability in dysbiotic oral microbiome.  To help me on this, it would appreciate if everyone with PD could answer the following questions:  Have you over had a tooth abscess, tooth extraction or root canal and if so, w…[Read more]

I have one – oral health.  If you have PD, please complete a survey I have come up with to prove or disprove the idea oral health issues could be the root cause of PD and Pre-PD.  Very short but hugely important

ORAL HEALTH SURVEY – CLICK TO COMPLETE

Lyn,  have you been tested for toxins?  Are you currently diagnoiosed with PD or Pre-PD?  If you were diagnoised with PD how long after you were diagnoised with RBD?  Have you had your gut sequenced?

I would like to ask everyone on this theard one question:  Have you been tested for toxins?   Chemical, Organic Acid, Mold, Pesticides, Heavy Metals, Mercury etc?  We are all talking about possible exposure and symptoms, but without knowing levels in body currently or prior, we are unableto determine root cause.  I have been diagnoised with iRBD…[Read more]

Todd –  you can get a SCFA test done at Great Plains Lab. I use them for all my testing. Taking Butyric Acid does not answer why and is probably why few see any results.   Detoxing and restoring the gut microbiome back to where it produces SCFA’s is what we need to do.  Just a question – do you have body odor?  If you do not, it is a sure indi…[Read more]

Beth – Interesting, definately could be cause of Vit B12 defeciency.  Did or have you had any other test maybe for SCFA (short chain fatty acids), toxins, organic acids, heavy metals, or pestisides?  Did you have iRBD (REM Sleep Behavior Disorder) prior to PD diagnosis or after?  There is always a “why” to everything, we just have to keep as…[Read more]

Russ – I still keep asking what killed the gut microbiome stopping the production of butyrate.  This is the “WHY”I am searching for.  I am searching the connection between my gut dysbiosis and my toxicology test.  The gut dysbiosis is the key to pre-parkinson’s.  It is the dysbiosis that allows the transfer of mis folded proteins or toxinis to ent…[Read more]

Toni,

Here are my recommendations:   Toxic Chemicals, Organic Acids, Mold – Great Plains Labratories  (you can find online, you can pay cash, you just need an RX from you doctor –  I even think they have teledocs that can help.   Gut Microbiome sequencing.  I have used 4  Biome, Viome, American Gut Project & Sun Genomics    American should be…[Read more]

Ingrid,  I have been doing the same, but I have restricted my lectins because rescent research has confirmed the gut brain connection and the vagal nerve is stimulated by lectins as proven the the transport of paraquat from ENS to mid brain or the lack there of when a patient has undergone a vagalotamy.  It has helped my iRBD which is just p…[Read more]

Toni – don’t sweat it. If that was the case, we would see a much larger number of marathoners with Parkinson’s.  I am an endurance runner and have prodromol PD, but do not have any science to connect it to my passion and love for running.  I do though have connections that could have me in my current situation and I would like to hear from you a…[Read more]

Russ and Murray,

Have either of you tested to see why you are not producing butyrate?

I suffer from low butyrate ALSO and have some questions for all:

1.  Prior to taking butyrate, did you test your SCFA levels?

2a.  Prior to taking butyrate, did you have your gut microbiome sequenced in order to determine levels of bacteria and fungi (in particular the ones that produce SCFA’S)?

2.  Prior to taking butyrate, did you notice th…[Read more]