Mary Beth is a freelance writer specializing in personal narratives. Her work focuses on the outdoors and the transformative powers of nature. When her dad was diagnosed with Parkinson’s in 2013, her search to understand the disease materialized through language. She now writes to help others understand the disease and how to be a compassionate caregiver.
Every time I step foot in a new country, I dive into the local culture to try to intimately understand the region. I compare and contrast it with the U.S., where I’m from, in an effort to expand my understanding and experiences. But I’m not only an explorer of geographical…
Self-care sometimes gets a reputation for being a woo-woo practice — something that’s unconventional and has little scientific data to back it up. But the body of scientific evidence showing that self-care practices can have an impact is growing. A self-care routine has been shown to…
When my parents moved into their current house about 10 years ago, one thing they quickly learned about the property was that the previous owner had Parkinson’s disease. From what they understood, the man took his last breaths in the house, living out the end of his days…
My dad, who has Parkinson’s disease, has experienced some weight loss recently. I have theories about that. I think it’s partly because of his Parkinson’s tremors, which not only increase his energy output, but also make it more difficult for him to eat (which could mean that he’s…
The sun peeked through the window at 8 a.m. on a weekday morning, and I found myself wanting to shut the world out. The day before, I’d hiked 12 miles through the Rocky Mountains with a friend, and my chronic illness had made it difficult to rebound from the exertion.
I was texting with my dad a few weeks ago when he told me something that stopped me in my tracks: He had his first fall. I often live in a state of denial when it comes to my dad’s experience with Parkinson’s disease, believing he’ll be an exception…
I’m on the phone with a technology expert from the Los Angeles County Sheriff’s Department — the biggest sheriff’s department in the world — when the idea strikes me: Dad could use an Apple Watch to help monitor potential falls caused by his…
“Hi, Mom,” I say after hitting the green button on my phone. “How are you?” “Hi, honey. I’m doing well,” she responds. It’s an early Sunday afternoon and she sounds chipper. We don’t connect often, so I’m grateful to hear her voice. But I’m curious about the call. Is something…
Years ago, my dad realized that acute stress made his Parkinson’s symptoms worse. He was more inclined to freeze or experience exacerbated tremors, especially if he was full of anxiety. This revelation led him to focus on reducing the amount of stress he experiences on a regular…
Snow is falling from the sky in tufts here in the Colorado mountains as I write this. Christmas is on my brain. It’s the time of year when my sister and I book flights back to Michigan and brainstorm ways to make the season memorable. For me, doing that means…
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