Author Archives: Mary Beth Skylis

Watching My Dad Lose Vocal Power Is Painful

“What?” I ask from across the room, closing the distance between my dad and me. I don’t want to ask him to repeat himself again. “Can you grab me a glass of water and my pills?” Dad raises his voice, and this time I hear him. I fill a mug…

Stitching Moments Together With My Dad

Every once in a while, the urge to crochet washes over me. It usually happens when the temperatures start to dip into the 30s when Christmas is just around the corner. During a recent visit home, the desire to make something with my hands emerged…

When Home Becomes a Labyrinth

A few nights ago, Dad and I were watching an episode of “Star Trek” when he decided it was time for a bowl of ice cream. He doesn’t like to take his medications in the evening because the side effects affect…

Counting My Blessings as the Seasons Change

I recently zigzagged across the country, preparing to make my new home on the Eastern Seaboard for the winter. While my dad, Jim, observed my journey from afar, he sent me a message saying, “Maybe while you’re wandering around the country, you should wander home.”…

Finding a Community Through Forum Participation

The Parkinson’s News Today Forums are designed to create a safe environment for those impacted by the disease. Whether we are discussing our lifestyles or looking for ways to connect, technology offers new platforms to help us explore our uncertainty. Caregivers, physicians, and patients alike have the opportunity to…

Podcasts Make It Easier to Stay Informed

Living with Parkinson’s disease is a daily battle. It can be difficult to navigate the disease on your own, but the right resources can make staying informed a little easier. Since many Parkinson’s patients experience tremors on a regular basis, audiobooks and podcasts may be helpful in lieu of books…

How to Participate in Parkinson’s Awareness Month

It’s April, and we’re halfway through Parkinson’s Awareness Month, an effort designed to focus on education about the disease. There are still regions of the world where Parkinson’s isn’t yet understood. And there aren’t words to describe the disease in some distant corners of the Earth, which makes facing…

Tips to Stay Fit During Coronavirus Isolation

If you’re in the same boat as my dad, chances are that your gym is on lockdown. Dad was disappointed to hear that Rock Steady Boxing (RSB) is pausing operations during the global coronavirus pandemic. But he also recognized that it’s the safest move. This global quarantine is really…

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