Vic
Forum Replies Created
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My guy is the same way about eating. I’m suspecting that he doesn’t want me to know he’s having trouble feeding himself! I too worry about his food intake. Someone suggested that I try boost, the protein drink. He loves the chocolate one and has it every morning! Try it!
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No, I use the real pot! Works great!
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I am very interested in your group and will participate! My significant other was diagnosed last summer and it seems like I am trapped and can’t breathe at times. Thanks for this
Feel free to message me.
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I am very interested in the zoom meetings! My husband has PSP which is basically pd on steroids. We got the diagnosis in 2021 and I am struggling! We live in Va Beach. Please add me to your list
vicki
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I am very interested!
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I am very interested!
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I too am overwhelmed and frightened as well. I’m scared to death that he will fall and really break something….
He gets up when my back is turned and nights are horrible as he takes his pants off and then wets the bed or decides to take a walk! I moved the walker out of bedroom to keep the walking down, seems to help. I bought bed pads but they only work occasionally as he takes the diapers off during the night. I can’t sleep with him as he twitches in sleep and keeps me awake!
I feel like I am drowning and we have no relatives locally to help.
Two places were recommended but he is not ambulatory so they can’t take him! Someone suggested hospice but I think that’s only for end of life purposes.
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I too can be resentful! But when I get really upset, I want to be by myself. He has lost interest in it seems everything.
He constantly tells me how much he loves me, but it makes me feel trapped and I feel like I can’t breathe. I had a therapist but she really didn’t help much so I stopped. He has family but they seem to be sooo busy that we only ask for help when we are desperate. I feel myself starting to resent them.he is getting exercise, every day he alternates cardio and personal training and is feeling stronger.
this is a suck disease!