Forum Replies Created

  • timothy ross

    Member
    March 26, 2024 at 10:22 am in reply to: What research are you most excited about right now?

    I too am very hopeful that stem cell research may generate treatment that could halt progress of PD or repair some damage, and would certainly participate in any trial or investigation here in Spain.

    Timothy Ross

  • timothy ross

    Member
    August 1, 2023 at 10:44 am in reply to: Which Parkinson’s symptom bothers you the most?

    Feeling brain-foggedly stupid with serious loss of short-term memory, constipation, lethargy and having to push myself even to walk to the nearest shop, and having to leave so much for my wonderful wife to do.

  • timothy ross

    Member
    May 23, 2023 at 9:44 am in reply to: Inbrija new medication

    Inbrija was recently approved for use here in Spain, but I do not know if it is available in the public health system. I do hope so: I have a terribly dysphoric down when each dose of Sinemet fades, an hour or more before it is time for the next one. I have a neurology appointment on June 9th and may be able to find out.

  • timothy ross

    Member
    December 15, 2022 at 9:33 am in reply to: Go-To Gadgets for Life with Parkinson’s Disease

    An old-fashioned, broad-bladed, shoe-horn helps me to get shoes on

  • timothy ross

    Member
    March 14, 2024 at 9:39 am in reply to: Hot and cold effects on symptoms

    I too am very affected by temperature changes or any delay in taking my Sinemet, even the wearing off period before the next dose, with shivers and shakes. I live in southern Spain where the temperatures can fluctuate hugely. I have air conditioning units in the most used rooms, with which I can rapidly raise or lower the temperature, a fan heater in the bathroom, and layers of sweaters to adjust as needed.

  • timothy ross

    Member
    August 1, 2023 at 10:36 am in reply to: Which Parkinson’s symptom bothers you the most?

    Hi Kristi,
    You say ‘chewing’. You mean, literally, crushing between your molars? Does this make it work faster than just swallowing with water?
    How does this affect your eating time-table?

  • timothy ross

    Member
    May 23, 2023 at 9:37 am in reply to: Inbrija new medication

    It is not a higher dose, rather the 42mg presentation of Inbrija contains 33mg of Levodopa. A mite confusing.

  • timothy ross

    Member
    October 19, 2022 at 8:12 am in reply to: Urinary and Bowell Movement problems

    I had serious and painful constipation problems, requiring glycerine suppositories, but was then advised to cut way down on meat and to increase fibre and fruit. I found that breakfast of muesli with additional wheat and oat bran and berries, and stewed prunes with every meal and at other intervals – total about 150 grams a day. Wonderful relief, bowel movements about every 24 to 30 hours without strain.

    But does anyone know of possible negative effects of large amounts of prunes?