Regina
Forum Replies Created
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I was diagnosed in 2017 age 65. I also have essntial tremor which I controlled with limiting caffeine and stress. In October 2017 I was in the ER with tremors. Neurologist for movement disorders diagnosed me in November 2017 with ET with parkinsonian features. Patches messed up my skin big time and 2 medications got me very sick. Upon my request, my neurologist wrote a referral to neurosurgeon.
DBS has given me a new lease on life. Tremor improvement with some improvement with walking. I bought a lever harp and teaching myself to play. I keep busy and have good strength in upper body. Balance and stairs are challenges. Hope this helps.
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Hi John. Please try 2 stool softeners each day, large green salad with an olive oil dressing and glycerin suppositories. A triple threat that keeps things moving along. Keep in your daily routine. Never go more than 5 days without a BMU. Don’t want to wind up in the ER.
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Hi
Dx is diagnosis. Rasagaline is a MAO-B inhibitor which makes my body’s dopamine last longer
Balance is a problem too.
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I use 2 stool softeners and suppositories. PD complicated by a congenital long bowel. Per my GI md.
PS – Do no care for Parkie name.
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I have essestial/familial tremor. Had to retire at 62 and 3 years later had bad tremors and also dx with parkinson’s.
PD was making me tired. Both cause tremors and PD meds made me sick. Had DBS and doing well. ET people have a minimal increased chance of devoting PD. No family history of PD.
I take Rasagaline for PD and Propanolol for ET. Rest on your bad days and enjoy the rest.
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I agree with comments encouraging DBS if it is recommended by the surgeon. I had it done all in one day. Almost a year ago. Now with all stimulator programs no one could tell I had both PD and ET. Most improved are tremors, some improvement with walking. At first I was a little frightened but went for it. If your neurologist recommends you to a good neurosurgeon which I had researched and he/she recommends it for your particular symptoms go for it
Regina
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If your neurosurgeon believes it to be beneficial to you, I would definitely recommend it. I was diagnosed in Oct. 2017. I can’t tolerate all the meds including the patches. Only Rasagiline. I had dbs surgery in June 2020. I know I still have PD but feel so much better. I bought myself a floor harp and want to learn how to play. Why not feel as good as you can for as long as you can? I am 68 years old. Go for it!
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Yes, I would emphasize the progress made to date and the uniqueness in each individual.
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No one in the family had PD. Both my mother and I have ET. My doctor told me that patients with ET have about a 5-6%
Increased chance of developing PD.
Also, there is a propensity for those of Irish descent to have ET (eg, Katherine Hepburn).
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I was diagnosed 3 plus years ago. Patch raised up and fell off and the meds all made me sick. I have tremor dominant pd. Had DBS surgery in June 2020 and feel so much better. Still have mild tremor in right hand but I didn’t let it stop me. I am 68 and teaching myself how to play the harp. I talk in my sleep but laugh about it. PD is not a death sentence- not by a long shot!