Marla Wise
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I was on clonazepam (0.5) for about two years. It definitely helped me sleep and my dystonia calmed down I just met with my new neurologist and she wanted me off it because studies show it can lead to dementia, especially in older people (I’m 71). I’m now taking baclofen, which helps my muscle spasms but not my sleep! Any others with similar experience?
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Absolutely!
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Yes, I would be interested.
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“Every Victory Counts” was so very informative for me and I often refer to it as new questions arise. I am curious about Dr. Ahlskog and put a hold on his book from our library. Am anxious to read it! Thanks for sharing!
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? I use it for restless leg too, although meds make it better!
Happy jumping Jo!
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Thanks for your response Ally. Have been doing some reading on CBT.
Andrew, I like your approach with the positive self talk and staying in the present. It helps keep the mind from “going down the rabbit hole”! Also the breathing technique is helpful. When I was teaching, we did breathing with the students each morning to get ourselves ready for learning. I just need to remember to do it!
I bought a mini trampoline to keep in the back bedroom for times I feel stresses and just NEED to move!
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Stress definitely makes my symptoms worse, especially the anxiousness! I’ve dabbled in mindfulness practices, but haven’t really pursued more information, which I think I will do. At this point, physical activity seems to help me the most.