[John]

I have been on Crexont. I had reoccuring bad of #2 many times. I am back on The Rytary but my new Dr. had me increase the total doseage to 390 mg. 4 times a day along with twice a day Amantadine.

My oppinion, do not hesitate to find a new doctor if you are having trouble and are not staying the course. Don’t wait to help yourself.!!

[John]

I take 4 times a day. Definitely works better, if you don’t eat an hour before, and 45 minutes after. I pay for 3 month supply $125. With Rytary , I was taking 2 different mg’s . 4 times a day for same strength as 350mg Crexont, total $50. Do not take Amantadine and Crexont, they conflict.

[John]

I am taking C/L Crexont 87.5/350 mg, 4 times a day or every 4 to 41/2 hours. The Rytary, same mg. only lasted 21/2 hours on a 4 hour schedule. Crexont is made by same company that makes Rytary. Didinitely works better, also more expensive.

For urination try using Trospium Chloride ER 60 mg cap. Nood to take empty stomach.

[John]

Yes, I am using, last about 11/2hours longer than comparable Rytary 350 mg. More expensive. No real side effects to speak of.

[John]

Yes, mouth guard helps tremendously. Also, ask ur doctor about Amantadine for dyskinesia,

[John]

There is a new C/L made by same company as Rytary. It extends the release of the C/L. Very strong , test before taking.

#2 Urinary I am taking Trospium Chloride ER 60 mg cap. Prescribed by urologist. So far getting up every 21/2 hours instead of hour. So far happy with results!

[John]

I tried using a new c/l called Crexont! One pill compared to 2 pills of Rytary!! It was to strong, I was totally light headed and coudn’t drice. Back to the Rytary!!!

[John]

Definitely you should talk with your urologist. Mine told me don’t drink 2 hours before you go to bed. Hasn’t helped, still get up 4 to 5 times a night.

[John]

Here is an update from my urologist. About 35 to 40 percent of the people with PD he sees, get up 3 to 5 times a night to urinate or cannot urinate at all. He doesn’t know what is worse.

[John]

Supposedly Rytary is becoming a generic. It will be replaced by Crexont. I don’t know if insurance will help pay for it.

[John]

I am 85, had PD sincs 2016! I take 1 Rytary 145 mg and 1 195 mg together every 4 hours, 4 times a day!. Definitely helps, when I don’t take resting tremor gets bad and my body misses it.

[John]

I find by going to bed later, after 11PM, that I do sleep longer,maybe an hour and half, before waking up. Definitely there is a urlogical problem associated with the PD, so by going to bed later allows you the not having to use the bathroom as much. Also, I agree a fast 20 minute nap, maybe once in the morning and once in the afternoon helps.

[John]

Yes, I like to read about studies. Did anyone see the note on Ultrasound offered soon at Vanderbit Univ. Med. Center? Also, MJfox newscasts are very informative as most participants have PD.

I feel that very little is accepted by the FDA. There is a bracelet, that costs $7100, that insurance companies won’t contribute to, also one needs to buy refills that go into the bracelet . Supposedly bracelet controls Tremors. If you get help at VA it costs nothing. Unfortunately its impossible to get taken

care of at VA. Bracelet is called Cala Klg!

[John]

I am really happy that you have found peace by hanging with people that have PD, but I tend to disagree with you. I retired at 82, after working at 6 days a week and traveling all over US. I contacted PD when I was 78. At that time I was able to hang out with anybody of any age and go anywhere.

Now I have to select whom I feel comfortable with and possibly explain my tremors, possibly not eating a whole meal , and be extra cautious getting up and walking.

I really don’t want to be around people with the same type problems, luckily the gym I belong to and my trainer, understand my problems, ignore them and train me as they do others.

In summary, life does not get better, just more frustrating. Hopefully you have a great mate, or companion.

[John]

Get up every hour from 12 to 4. Urologist said definitely sideeffect of PD. Neurologist had said no.

[John]

this was sent to wrong question.

[John]

Yes, I attribute to sleeping less at night.

[John]

My PD doctor said it’s never worked for any of her patients.

[John]

I take 7am. 11 am, 3pm, 7 pm. 2 tablets each 145 mg, trying 1 145mg and 1 195mg as tablets seem to take 1/2 hour to work and only last 21/2 hours. Will let you know how that works.

Incidentally if you are having a urination problem and your PD says its not due to PD, they are wrong. I was with a urologist yesterday and he said definitely it effects urination problem and if you are cancer free it’s from PD. I am trying GEMTESA. Will update all as time goes on.

[John]

Did you stop taking C/L or are you using as a combination with Macura?

Thank you

[John]

Beth

ERRyatry will help, but when you firdt take in morning you will shake approx. half hour. Pills only last 3 1/2 hours I take 2 pills every 4 hours. Heavy excercise will cause shaking, but it really helps fight PD. I am walking much better, more endurance, just make sure you have empty stomch at least 1 and half hours before taking med.

[John]

Ask your urologist for either Trospium Chlooride ER 60 mg cap. take 1 tablet about 2 to 3 in pm, no food 1 hour food before and after,or Gemtesa 75mg

[John]

I was with a new PD doctor. He informed me that individuals with PD should see a skin doctor at least once a year as melanoma is very common.

I am trying to get a price on Crexor , a levodopa that lasts longer, made by Rytary which becomes a generic.

[John]

First of all are you flying, driving, bus or rail??

Secondly, are you plan on going to museums, theater , or central park? If so stay on the west side.

Basically NYC is a walking town. The bustours are legitimate, so you can get off or on. Remember NYC is mostly ADA, on the other hand older rest. didn’t have to update. When theater let’s out sidewalks very crowded for awhile. Times Square very crowded.

Enjoy!! It ain’t cheap!!!