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  • 2015 i fell on my back. Major operation with cervical one Dr said my adrenal glands -,salt, was injured. 6 years later i got Parkinson symptoms and tremors and then fainted. I had addison and almost died. My tremurs stopped . K walked better. I learned that dopamine used these glands to get gut dopomine to the brain. I have gait problems only. I am European and international lawyer. I fitmly
    believe that the non motor dymptond side effects that we have to deal with. But dopamine can not go to the brain by blood. It is why we have l_dops. But we know it used the adrenal glands to get dopamine to the head. I, a sceptic french think because of the accudent, then parkinsoni and then Addison have a flow connection as the normal dopamine
    Was slowed down by the Addison gland. I take one tablet per day for Addison. I have no dark skin. But the Parkinson advance
    symptoms are faster as the gland can only work max 10 years on fabricated salt. I believe that there is an active relationship between the adrenal gland injury and Pd. This comes from a fact only believer. But it sounds logicsl and i feel it.

  • Patricia Conner

    Member
    June 28, 2022 at 2:39 pm in reply to: What Parkinson’s research studies are you following?

    I am dual citizen and i find that it depends .  I am very bias to the European, i am french/USA, as older countries might not have know the name but knew what worked and did not.  Churches plaza were built so people would have family gatherings and make people MOVE.  Also, the need of forgetting it by  games etc so you laugh is as important by the older countries.  The teach you how to live with it,.  The Russians and latins stressed swimming and spas with special water. Etc.     I found the Americans are stronger in scientific research and medical research.  But their results are far in the distance so i will probably not profit from it.  I believe INTENT is #1 as use lower amount of dopamine and both continents stress that.  I agree with European and do not believe demencia, constipation and other diseases are a sign of Parkinson but more a side effect due to muscle  age  but agree with both that these things must be treated in the over all picture. .  I believe in European belief that as little as possible medicine should be used as balance is the most important.  Just giving more dopamine and médecine have not proven effective enough to justify. Less is best.

    I think uSA for YouTube as we can now make clearer decisions. Based on our own individuality.

  • Patricia Conner

    Member
    May 5, 2022 at 2:58 pm in reply to: Naturopathic Treatment of PD

    I am French so we do not see this as much different than what you need as you age. .  I take tumeric, lions mane and other mushrooms, vitamins like d and b 6,12.   and others BEFORE  and now with parkinson.  It helps me feel normal.  I do take 250  c/l and cut it in half.  I take the larger part in the morning as i need less for sleeping.  I do excercise but similar to what I did before.  You have to walk in Paris no matter what.   The only real difference is constipation medicine AND anti depressent  which the mushrooms solve.  I also learnt another language for my cognitive and do strength for voice.   In Europe, we learn languages but it is especially good for Parkinson as you speak out loud and use your hands. Grammar, you can make mistakes as not for a job.   We stress INtent.  I have been lucky as getting older and Parkinson need similar attitudes, vitamins, efforts as aging.  But medicinal mushrooms drops seem to have mafe s big difference.  Also fresh food and a small glass of wine and people watching in  cafe with friends.  Patricia

  • Patricia Conner

    Member
    May 5, 2022 at 2:50 pm in reply to: Music and fine motor skills

    <p style=”text-align: left;”>Yes,especially chair dancing to rod Stewart.  Yes,yes, to music.</p>

  • Patricia Conner

    Member
    May 5, 2022 at 2:47 pm in reply to: Naturopathic Treatment of PD

    I am French so we do not see this as much different than what you need as you age. .  I take tumeric, lions mane and other mushrooms, vitamins like d and b 6,12.   and others BEFORE  and now with parkinson.  It helps me feel normal.  I do take 250  c/l and cut it in half.  I take the larger part in the morning as i need less for sleeping.  I do excercise but similar to what I did before.  You have to walk in Paris no matter what.   The only real difference is constipation medicine AND anti depressent  which the mushrooms solve.  I also learnt another language for my cognitive and do strength for voice.   In Europe, we learn languages but it is especially good for Parkinson as you speak out loud and use your hands. Grammar, you can make mistakes as not for a job.   We stress INtent.  I have been lucky as getting older and Parkinson need similar attitudes, vitamins, efforts as aging.  But medicinal mushrooms drops seem to have mafe s big difference.  Also fresh food and a small glass of wine and people watching in  cafe with friends.  Patricia

  • Patricia Conner

    Member
    January 13, 2022 at 1:55 am in reply to: Do you have theories about why you have Parkinsons?
    1. I had a bad accedent that affected my neck and spine.  It was a 10hour operation and a lot of physical excercise afterwards. .  I was operated in the USA,  but physical was in Mexico via the French .  Usa was good for operations but they have no concept on just living with a problem as not all can be solved.  Sorry, I am European.  Anyway, I swam three times a week and had magnets (FORBIDDEN IN THE STATES BUT ETERNALLY USED IN EUROPE) and dances to Rod  Stewart.  When covid came, I could not go to the pool and my addison pick up.  I went on urgent care, dying and I survived but then I had Parkinson tremors.  As it worked after the accident, I dance sitting on a chair like a mad arm swinging women, voice excercises and swam.  But I have non systems Parkinson and tiredness.  I learned that you can not be tired twice so only one can cause that.  I take one pill a day for addison and only one for  Parkinson .  Luckily, I am of  two nationalities.  The USA likes to know Why and has a boss for all.  This is good for new medicine.  But the French like to know how to live with it and work backwards to forwards.  They insiste on excercises and just brushing  off the idea something gave it to you.  It is just life. I dance to rod Stewart “you can stop me now” which makes me throw off the weight of knowing I have Parkinson.  His rythem is constant AND 15minutes takes off the half day freezing etc.   But my addison is fatal in ten yrs but never causes me any problems except one pill a day. .  Me and Rod Stewart, swimming, singing for voice are working for me to have fun.  I am 75yrs so my knees hurt but that is age, not Parkinson. My excercise and living with Parkinson is like any 75 yrs as long as I keep dancing to Rod and also alexander who has Parkinson but was leader of boichoi ballet.  The Russians are like the French.  We need to know how to Live with it and why is for the future generation.  So your mental spirit is most important.  Do not hope for a cure but fun the next day.  Europe and Asia and Russia are famous for “living” with it as we had the the “trembling sickness” for many years.  The US is working on the INTENT theory that saves Dopamine and we are very grateful for their help as they are to ours.  I do not believe we know what causes it so no guilt trips. I understand lung cancer as that is smoking.  But Parkinson is just life and IS the least horrible (NS, MA, AKS, HUNINGTONE, ETC)
  • Patricia Conner

    Member
    January 11, 2022 at 5:58 pm in reply to: What helps you live your best life with PD?

    I found Rod Stewart at a christmas program on you tube.  it was one of his old songs and i started dancing while sitting on a chair.  i work out swimming three times a week and do voice excercises and study  spanish.  .  But this dancing made me feel good for hours and i then go out, i could walk better.  So just being able to do what I wanted and wildly  made me feel free from the PD chain.  small thing but it worked.

     

  • Patricia Conner

    Member
    January 5, 2022 at 5:35 pm in reply to: What helps you live your best life with PD?

    i just dance to rod stewart and study spanish, sweimm and wasl with a walker.  , i.e. things i never had time to do.  it is not only lowers the  pain but nonsense dancing works.  I am French .    Older countries never had dopamine but knew one thing:  keep them dancing and give give AS LITTLE MEDICINE AS POSSIBLE.  FOOD was all we had and certain foods are better than others.    We still keep to that idea and avoid the deep rays.  Food, wine, people around them works.

    MOVE :   we knew to keep them outside , so out went the sicked and danced. It is a nonsense dance but makes you move. The mongolians, Russians, Greek had very little of the “shaking disease as they danced AND SPEAK USING HANDS AND MOVEMENTS.   .

    b  do things with Intent.  They knew that to verbally  keep talking , thinking and laughing helped and helped swallowing. so we as kids jobs  would be to talk to them about everything.  It just worked and we had fun. .

    i read the new finding but i just think, how will this help me live with it.   I think we are over giving massive medicine, .    we in France can not make them all happy  but that is a problem that is not Parkinson only.  But we keep them active and physically and mentally which come from past that had only thosetools.  the younger countries like to do research so it is a goodcombination.

    but the above i also is true for many problems and sickness.  We feel that people actually die faster of lonelyness.   Having Parkinson is no treat for me but Cancer or others are worse.

    patricia conner

  • As my case follows a path of logic, they believed it. I am not lacking dopamine but i am lacking the transmission from gut to brain via Addison ?? gland. In France, where i am from, they are watching accidents one of possible cause/,effect. Slow working results of dopamine is the general reason for Parkinson and accidents vary the. Effects and speed for not only Parkinson but other problems. So they are very interested.

  • Patricia Conner

    Member
    July 12, 2022 at 3:03 pm in reply to: Is anyone out there taking methylene blue?

    What is methylene blue

  • Patricia Conner

    Member
    January 9, 2022 at 3:33 pm in reply to: Do you have theories about why you have Parkinsons?

    I  had an accident and needed cervical surgery.  My walking was badterwards.  As I was getting better, my Parkinson started.  The first Dr was American and gave me lots of pills that made me feel worse.  I am French living in an American environment.  French usually run out the door if surgery or medication are mentioned.  The second dr was Mexican S LATIN and similar to the French. He took all the pills away except Dopamine and a mild anti depressent. .  We French see Parkinson differently as we have had it 2,000 yrs  befor dopimine  was even known. It was called the shaking disease and generally early onset as we died earlier .    2,000 yrs ago til now, excercise  and diet were the way we treated the shaking disease. . We knew then that the excercise did not work if it was something of a habit.  it had to NOT be like what you do everyday.   It had to be 15 minutes twice a day of radical musical dance to the Gods and you were then ok for most of the day.  They knew habit played a role.  I took the French way with swimming three times a week, dancing and excercising to rod stewart or others upon waking and in the afternoon, and then I was fine for the other hours .We knew voice was an issue so I read French  or an article outloud with exaggeration and only 1 dopamine pill per day.     I am proud of the work that the Americans do as nowdays we can communicate both efforts..  But the medicine the american give at early onset and too much,  defies long held historical thoughts that  “little is better”. If we were able to know this before medicine,  than some of it should continue.  That some of it is “learning to live with it” via excercise, good diet, sense of humor,  etc.”   Parkinson is not the worst of the sickness especially when  one cure allows you to dance Michael Jackson, Elvis etc.   Also, if you start via medicine, you can not go back as the body adaptts and then  needs it.   But you can not just increase it.  We knew since.2,000 ago.   ANSWER:  Learn to live with it  with minimal medicine.  If it gets worse, increase excercise and than you have the the medicine there as the backup.   My Parkinson at 75 is like a women who is 75.  Ecept, I dance, and noboby can stop me.  We all laugh and they dance with me.  My real problem are my 75 yrs old  knees, they do not want to participate.    In reality, almost anyone who is older must  do excercises, diet, social stuff.  I have learnt that I will  never know the why but have learnt the how.