Forum Replies Created

  • Beth Ann Chambers

    Member
    May 14, 2023 at 11:41 pm in reply to: Care Partners/Givers Interested in Support Group

    I am interested in a support group via Zoom for sure!

    Beth Ann Chambers

  • Beth Ann Chambers

    Member
    December 13, 2022 at 2:21 pm in reply to: Care Partners/Givers Interested in Support Group

    I am a caregiver for my Mom with Parkinson’s and I would love to be on a Zoom to help support each other

    Beth Ann

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:53 pm in reply to: Do you rely on outside help?

    Hi Mary Beth,

    Thank you for bringing this topic tonight I am very interested in trying to find out about how to get outside help because I’m a sole caregiver for my mom since 2014 when she was diagnosed. And I was diagnosed in November 2020 with Parkinson’s and I didn’t see that coming. Any suggestions for support or how to find someone to hire would be greatly appreciated.

    Beth Ann

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:46 pm in reply to: Children of parents with Parkinson’s disease

    Hi Ally,
    I am the sole caregiver of my mother who has Parkinson’s diagnosed December 2014. Then I noticed I was having tremors back before the pandemic as I went to seek assistance for my issues I was diagnosed with Parkinson’s as well and November 2020 it has been a blessing to care for my mom but it also the most difficult thing I feel very isolated. I think it became more difficult for me personally as I was diagnosed with PD. I try not to dwell on it but being a full-time caregiver is not easy as many of you know and I am desperate for some sort of support or how to find some help so I can have some sort of break. Thank you, Beth Ann

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:42 pm in reply to: Care Partners/Givers Interested in Support Group

    Hi Diana,

    I would be very interested in a caregiver support zoom call. I am a full-time caregiver to my mom was diagnosed in December 2014 with Parkinson’s needless to say with the pandemic isolation and loneliness is real as a caregiver as no one really gets what you’re going through. God bless you all as we all know that is truly a labor of love and I am blessed to be able to care for my mom. Beth Ann

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:37 pm in reply to: overwhelming as a caregiver

    Hi Kathy,
    Thank you so much for sharing your story I am a full-time caregiver for my mom who has Parkinson’s diagnosed in December 2014. And I was diagnosed in November 2020 with Parkinson’s. It really is a challenge day in and out. Since the pandemic course my mom less interested in things she knows to enjoy so therefore we both and isolated more and more. I’m not sure where to reach out for resources or help at this point in time. I want to keep her happy and healthy however it seems to be taking a toll on me. I don’t want to sound like I’m complaining it’s a blessing to be able to care for my mom I also took care of both of my grandparents before they passed. I guess I thought maybe family members would Reach out come out and visit my mom. I pray we all can stay healthy and sane as we rock this journey together thank you for your thoughts. Beth Ann

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:32 pm in reply to: Has your PWP lost interest in things they once liked?

    Yes my mother has lost interest in most things she used to really enjoy even going out for lunch or to visit someone she has no real interest in doing so. It’s heartbreaking as a caregiver and it also isolates me not only her

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:31 pm in reply to: Who are you in relation to your person with Parkinson’s?

    Hi Mary Beth My Mother has Parkinson’s diagnosed 12/2014 and I am her caregiver full time. I also was diagnosed with Parkinson’s 11/2020.

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:58 pm in reply to: What has been your greatest challenge as a caregiver?

    Hi Majorie,

    Thank you so much for sharing your thoughts as you’ve been caregiving your husband. I am the caregiver so caregiver for my mom diagnosed since December 2014 and much to my surprise I was diagnosed in November 2020 with Parkinson’s as well. I’m trying to be strong physically mentally and emotionally for both of us but my mom has lost interest in many things that she used to really enjoy. As well as losing her gate and she is so afraid of falling even though she has not fallen in a while. We have done physical therapy she does not seem to want to do exercises for me. I am trying to do more mindful meditation for myself as the stress & anxiety I am experiencing is overwhelming at times. Every day I try to remember what I’m grateful for and all the blessings that we do have each other I just feel like if there was a way to get a break at times that might help. Thank you for your thoughts and I wish you well in your journey Beth Ann

  • Beth Ann Chambers

    Member
    November 14, 2022 at 2:58 pm in reply to: What has been your greatest challenge as a caregiver?

    Hi Majorie,

    Thank you so much for sharing your thoughts as you’ve been caregiving your husband. I am the caregiver so caregiver for my mom diagnosed since December 2014 and much to my surprise I was diagnosed in November 2020 with Parkinson’s as well. I’m trying to be strong physically mentally and emotionally for both of us but my mom has lost interest in many things that she used to really enjoy. As well as losing her gate and she is so afraid of falling even though she has not fallen in a while. We have done physical therapy she does not seem to want to do exercises for me. I am trying to do more mindful meditation for myself as the stress & anxiety I am experiencing is overwhelming at times. Every day I try to remember what I’m grateful for and all the blessings that we do have each other I just feel like if there was a way to get a break at times that might help. Thank you for your thoughts and I wish you well in your journey Beth Ann