• Deleted User

    Deleted User
    June 29, 2018 at 3:07 pm

    I agree with these causes and would like to add something.  I firmly believe trauma (emotional, physical and/or mental) can be a trigger for those of us who may be genetically prone to this disease.  As examples; I was diagnosed with PD 7 months after the suicide of my soulmate.  We had been together over 33 years.  Another friend was attacked and beaten up about the head  years prior to her diagnosis.  Others have shared with me traumas they feel caused the onset of their PD, whether it be divorce, chemotherapy, difficult child births etc.

  • Cheryl Hughes

    Member
    July 5, 2018 at 1:12 pm

    We believe my husband’s PD was caused by environmental issues. Forty years ago he was working at a school/church with approximately 100 other persons, 15 of whom contracted Parkinson’s. That seems to be an unusual amount of people. There were factories uphill and upstream from this location, and we believe something in the runoff from those factories may have contributed to this disease. We wish someone would investigate this.

  • Deleted User

    Deleted User
    July 5, 2018 at 1:37 pm

    Hi Cheryl,

    Thanks for sharing your experience.  I too believe that environmental issues can also trigger PD. I remember as a child, chasing the insecticide truck that was spewing pesticides in the neighborhood, following its cloud and breathing in its toxins.   I think that some of us may be more prone to certain diseases, like cancer or PD, and because of that inherent weakness, something triggers it.  I believe severe stress is a factor as well.

  • Frances Lo

    Member
    July 5, 2018 at 1:53 pm

    My mom and her brother both had PD, diagnosed in their 60’s, though there were earlier symptoms.  I was diagnosed in my 60’s, though I had symptoms at least 10 years previously.  Had my genes done, and don’t have the “usual” genes that are known to cause PD.  But I have other genes that increase the potential of PD.  But my mom’s parents lived into their 70s and 80s without PD (previous generations didn’t live that long).  Certainly there’s a genetic component for some of us, but I think it gets turned on by something in the environment.  Hard to look back on 50 or 60 years and know what that might be.

  • Deleted User

    Deleted User
    July 5, 2018 at 1:57 pm

    Hi Frances, based on what I have read, there appear to be several major triggers, genetics, environment, trauma.  I am sure until someone figures out what causes PD, we will not have a cure 🙁

    • Rob Stehlin

      Member
      September 17, 2021 at 8:20 am

      Jean – I am working on just what might be the cause of PD in the majority of those with the disorder.  I will keep everyone updated on our findings.  You can help by taking our survey I have posted on this tread.   The solution will be discovered by those of us who suffer from this disorder.

  • Rob Stehlin

    Member
    September 15, 2021 at 6:58 am

    I have been working this and have exact question -what could be the root cause or the starting point of PD and have found a high probability in dysbiotic oral microbiome.  To help me on this, it would appreciate if everyone with PD could answer the following questions:  Have you over had a tooth abscess, tooth extraction or root canal and if so, was it before or after your diagnosis.  I have a survey on my whyRBD.com website. It would be much appreciated if everyone with PD would take the short survey. I will share results with everyone who participates in the next month or two.  I have iRBD, I have pre-PD, I have oral microbiome issues. I have gut dysbiosis.  Together we can solve this puzzle if we just work together.  I sure hope this forum does not try to block me from asking my fellow sufferers to compete my survey.   CLICK FOR SURVEY

    Rob

    • Rob Stehlin

      Member
      September 17, 2021 at 8:19 am

      Jean – I am working on just what might be the cause of PD in the majority of those with the disorder.  I will keep everyone updated on our findings.  You can help by taking our survey I have posted on this tread.   The solution will be discovered by those of us who suffer from this disorder.

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