Cheryl Hughes

Hubby has Parkinson’s as well as a huge percentage of people we worked with during the 1970’s. We wish someone would investigate the environmental conditions of that location, as we suspect toxic chemicals in the soil and water. Of the almost 100 people who worked there, 15 that we are aware of were later diagnosed with Parkinson’s.

Two things I wanted to add – our tele-med visits were much longer than the time we would have actually spent with the doctor in their office. They were both (neurologist and PCP) at least 45 minutes long. Also, we had their undivided attention, and they seemed more engaged. Perhaps it was because this was new to them and they had allotted more…[Read more]

We had our first telemed visit with the neurologist. His first words were, “Thank you for inviting me into your home.” I hadn’t thought of it that way!

Then he asked to see the set-up that we have for my husband – his hospital bed, Hoyer lift, grab bars in the bathroom, etc. I was glad I had straightened up that morning and that the bed was made!

The fear only came after the doctor looked my husband in the eye and said, “If you get the COVID-19, you will not survive.” Those were his exact words, and they were shocking, partly because he is not usually the type to speak idle words. Then he turned to me and said, “Be careful and do not allow people into your home.”

Kevin, please use what I wrote, just delete the final sentence “I would be honored to be featured for Parkinson’s Awareness Month as my husband’s caregiver.”

Thanks

Hi Kevin, got your email. You have my picture. Do you want another paragraph from me? Please give me some guidance as to what you want me to say. I will be happy to do it.

Thanks

Being a caregiver feels like one is “on-call” 24/7.  It wasn’t like this at first, but after having had Parkinson’s Disease for 20+ years, my husband is totally dependent on others, usually me. Thankfully I have many life-lines: our daughters, our grandchildren, our church, our friends, and my amazing Parkinson’s support group.

Unless you live…[Read more]

We believe my husband’s PD was caused by environmental issues. Forty years ago he was working at a school/church with approximately 100 other persons, 15 of whom contracted Parkinson’s. That seems to be an unusual amount of people. There were factories uphill and upstream from this location, and we believe something in the runoff from those…[Read more]