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Cheryl Hughes replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis Information and General Questions 4 months ago
Hubby has Parkinson’s as well as a huge percentage of people we worked with during the 1970’s. We wish someone would investigate the environmental conditions of that location, as we suspect toxic chemicals in the soil and water. Of the almost 100 people who worked there, 15 that we are aware of were later diagnosed with Parkinson’s.
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Cheryl Hughes replied to the topic Has Covid-19 changed your doctor appointments? in the forum Coronavirus (COVID-19) and Parkinson’s 8 months, 3 weeks ago
Two things I wanted to add – our tele-med visits were much longer than the time we would have actually spent with the doctor in their office. They were both (neurologist and PCP) at least 45 minutes long. Also, we had their undivided attention, and they seemed more engaged. Perhaps it was because this was new to them and they had allotted more…[Read more]
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Cheryl Hughes replied to the topic Has Covid-19 changed your doctor appointments? in the forum Coronavirus (COVID-19) and Parkinson’s 8 months, 3 weeks ago
We had our first telemed visit with the neurologist. His first words were, “Thank you for inviting me into your home.” I hadn’t thought of it that way!
Then he asked to see the set-up that we have for my husband – his hospital bed, Hoyer lift, grab bars in the bathroom, etc. I was glad I had straightened up that morning and that the bed was made!
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Cheryl Hughes replied to the topic Coping with fear in the forum Coronavirus (COVID-19) and Parkinson’s 8 months, 3 weeks ago
The fear only came after the doctor looked my husband in the eye and said, “If you get the COVID-19, you will not survive.” Those were his exact words, and they were shocking, partly because he is not usually the type to speak idle words. Then he turned to me and said, “Be careful and do not allow people into your home.”
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Cheryl Hughes replied to the topic Would you like to be featured for Parkinson's Awareness Month? in the forum A Forum for Parkinson's Disease Caregivers 10 months, 3 weeks ago
Kevin, please use what I wrote, just delete the final sentence “I would be honored to be featured for Parkinson’s Awareness Month as my husband’s caregiver.”
Thanks
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Cheryl Hughes replied to the topic Would you like to be featured for Parkinson's Awareness Month? in the forum A Forum for Parkinson's Disease Caregivers 10 months, 4 weeks ago
Hi Kevin, got your email. You have my picture. Do you want another paragraph from me? Please give me some guidance as to what you want me to say. I will be happy to do it.
Thanks
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Cheryl Hughes replied to the topic Would you like to be featured for Parkinson's Awareness Month? in the forum A Forum for Parkinson's Disease Caregivers 11 months, 2 weeks ago
Being a caregiver feels like one is “on-call” 24/7. It wasn’t like this at first, but after having had Parkinson’s Disease for 20+ years, my husband is totally dependent on others, usually me. Thankfully I have many life-lines: our daughters, our grandchildren, our church, our friends, and my amazing Parkinson’s support group.
Unless you live…[Read more]
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Cheryl Hughes started the topic Apathy in the forum A Forum for Parkinson's Disease Caregivers 2 years, 8 months ago
We know that with the progression of Parkinson’s disease, it is easy for a PWP (person with Parkinson’s) to give way to apathy, to give up, to lose the desire to keep going. What can we as caregivers do to help our loved one through this stage?
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Cheryl Hughes replied to the topic What Causes Parkinson's Disease? in the forum Diagnosis Information and General Questions 2 years, 8 months ago
We believe my husband’s PD was caused by environmental issues. Forty years ago he was working at a school/church with approximately 100 other persons, 15 of whom contracted Parkinson’s. That seems to be an unusual amount of people. There were factories uphill and upstream from this location, and we believe something in the runoff from those…[Read more]
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Cheryl Hughes became a registered member 2 years, 8 months ago