Parkinson’s News Forums › Forums › Living With Parkinson’s › Symptoms and Progression › Do you struggle with constipation? If so, have you found any helpful tools or treatments to manage it?
Tagged: constipation, treatment
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Do you struggle with constipation? If so, have you found any helpful tools or treatments to manage it?
Posted by Mary Beth Skylis on June 19, 2023 at 10:07 amMany Parkinson’s patients seem to report constipation at some point or another. This can be both uncomfortable and dangerous. And learning how to live with this symptom can be a challenge.
Do you struggle with constipation? If so, have you found any helpful tools or treatments to manage it?
RosemaryG replied 5 months, 1 week ago 28 Members · 30 Replies -
30 Replies
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Struggling with constipation would be an understatement. This started way before Parkinson’s was even on my radar. I even underwent two colonoscopies as a precaution. Glycerin suppositories used to work now I take stool softeners daily, drink 80 ounces of water, exercise, and even use Dulcolax suppositories but this does not seem to help. I am also currently taking motegrity, which I don’t think is working for me. Taking bulk fiber, or things like MiraLAX just makes it worse because I don’t get an urge to go and everything just seems to get stuck—for lack of a better way to describe it. I would love to hear the suggestions of others with Parkinson’s that have been successful in treating this symptom.
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My husband has PD, and we manage his with a combination of OTC medication, vitamins, and a strict diet. OTC: 400mg docusate at bedtime, 420mg magnesium in evening (also sleep promoting), Bromelain digestive enzyme breaks down proteins in digestive tract, one tablespoon of flax meal in oatmeal in morning, no processed food, only homemade whole grain bread. I bought a bread maker for this. No sugar. No salt. No red meat. Mostly fish. Mostly baked food. No heavily greased food or fried food. Exercise is also highly important. I take him to the gym every other day and work his body out. Lots of squats, torso twisting, thoracic spine movement, etc. He has a bowel movement every day. He is on lowest dose Sinemet 25/100.
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I have been using Myralax with breakfast every other day and it seems to do the trick. I wonder about LONG-TERM use
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I take 1 generic colace (docusate sodium 100 mg) in the AM and one in the PM plus
1 Magnesium Citrate 400 mg in the AM and one in the PM.
Seems to solve 90% of the constipation problems for me.
Good Luck
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Chia seeds every day. At least two heaping tablespoons.
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During diagnosis of PD, I regularly took a product that I get in Thailand (where I live) called Senokot. It worked very well as a stool softner. But when I searched online for more information, I found that Senokot was not recommended long term, as I suspect most other laxatives are not.
As a part of my efforts to eat a more natural diet, I decided to try the old tried and true remedy of prunes. I get the Sun Sweet (American) brand, pitted prunes, no additives (including sugar). In addition to being incredibly good and naturally sweet to eat, they have completely turned my bowel movements around. To date, I have been eating 4-5 whole prunes after breakfast, for about 3 months now, and my bowel movements are ‘perfect’! Soft and easy to evacuate.
I no longer take Senokot. When first taking the prunes, I would take a tablet of Senokot with the prunes to aid in the transition. As I saw that the prunes were having an effect, I weaned myself off the Senokot. Now, as I said above, bowels are ‘perfect’.
Just one caveat, if you decide to try prunes, GIVE THEM TIME TO WORK! Perhaps use a transitioning product, like I did with Senokot. But when you decide to stop transitioning, give prunes a couple of months to see a desired result. As with anything we put into our bodies, it takes time for our system to acclimate to it and begin to change.
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Eating around four fig before going to bed is beneficial.
Also abdominal exercise,ie voluntarily contracting abdominal muscles from upper abdomen(epigastrium)to lower abdomen(hypogastium) will increase peristaltic movements and is beneficial for constipation.this abdominal exercise can be performed while dyskinesia is troubling
Dr kutty -
My husband has struggled with constipation for many years, probably 15 years now. He used to eat Nu-Lax (senna, fig, dates) – worked well, but the texture wasn’t very unpalatable. We then found pure Senna leaf. 100% leaf made into tea (2 pinches) with also addition of fruit tea which takes the bitterness away. Non caffeine. Both products natural, not premade in bags – twice a day afternoon and before bed. This has kept his bowels moving regularly every 2 to 3 days for years.
Also like Jerry, about 5 years ago added Colace – 1 x 30mg pill in am and one in pm. The softener not the laxative type.He has always been a big fruit eater, and fibre. He still eats prunes, probably 5 or 6 a day but they alone do nothing for him. If he misses a tea for some reason, he pays for it which is really not nice.
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As others have, I have tried a bunch of remedies. But the ones that worked for me all included warnings: Don’t use for more than 7 days [or some similar amount.] I finally discovered that the treatment I use every day is–water.
Directions: Buy a few enema bulbs (I use the 4 ounce Fleet). Open the bulb and POUR OUT the saline solution. Fill the bulb with nicely warm water. Insert tip and empty the contents as much as possible into rectum. Sit on the toilet and within five minutes you should get results. Usually once a day works for me.
Don’t forget to lubricate the tip before each treatment. Wash the bottle and tip and set both aside to dry.
This is as close to nature and away from chemicals you can get.
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I’ve found that yogurt and kefir can help a lot with constipation and with other Parkinson’s symptoms. There was an article on Parkinsons News Today recently about how the microbiome of all Parkinsons sufferers is messed up pretty badly. I tried every different brand of yogurt and kefir I could find (to get as many different kinds of “good” bacteria that I could) twice a day for the last five weeks and my regularity, with no laxatives, is starting to return, I have more energy and strangely, it feels natural to swing my arms when I walk! Also, eat something that gives you plenty of fiber and get lots of exercise.
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Michael, what brand(s) did you find work? Are you consuming a full 8 ounces of yogurt or kefir (beverage or spread?) two times a day? I would love to find out more details about what is working for you and how much and when you’re having the yogurt or kefir.
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I’ve just discovered kiwi fruit. One a day is working well – at the moment. No idea why!
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A few months ago, I had 2 horrible constipation bouts within a few weeks. Tried all kinds of laxatives to finally find relief. My doctor recommended more vegetables in my diet which I always seem to fail to do. For years, I was taking 2 x 400 mg magnesium tablets and continue to do so. A pharmacist suggested MetaMucil fibre capsules. I can’t stand drinking the mixture stuff. Though the package dosage is 5 caps per day, I find that only one works very well. Breaks up the stool – slightly gassy. Really easy for prevention in my case.
Pat
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I want to say that everyone’s input has helped me and I appreciate the information. This forum also makes me realize that lots of us have had to try various approaches (I am not alone) and that not every treatment works for everyone. I am having some success taking magnesium and stool softeners so I am optimistic. I had tried it before but the magnesium made me nauseous and I don’t think it was the right kind of magnesium. I found a brand of magnesium citrate (Pure) I like. Hopefully this does the trick for a while. Now to focus on getting relief for my low back pain…
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I started to have periodic problems with constipation recently. I take one sachet of “Movicol” (available at Pharmacies in Australia) on alternate days and this seems to be working
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Fourteen years post-diagnosis, I was bouncing between constipation and diarrhea daily. I because concerned about overuse of laxatives and decided to take a different approach: I examined the food I ate and found my typical American diet consisted of meat and carbs and an occasional carrot. For the past few months I have made sure I get plenty of natural fiber daily along with a supplement. I take magnesium which promotes sleep and has a laxative effect, but also many other beneficial effects. I eat about 2/3 cup of quality yogurt (plain, not flavored) to which I add some fresh fruit. I intend to try kefir soon. And I mind hydration. When my mouth gets dry I hit the bottle, taking sips, not gulps. Your body will just dispose of the water if it gets too much too fast. This is especially important if your water has a fiber supplement or magnesium citrate in it. So far I have reduced laxative use from once or twice a day to once every five days.
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Five prunes after lunch and five prunes after dinner seems to be working for me right now.
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My long sought solution is tsp of Miralax mixed with prune juice, daily with, if needed, a weekly glycerin suppository as a catalyst. I I am now pretty regular on bowel movements (every 1.5 days). I also switched to a Mediterranean diet and take probiotics daily.
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I either eat 5-6 prunes daily or drink a cup (maybe 7 ounces) of prune juice daily. What a concept! It’s worked for months and it’s natural. 🙂
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Like others both Colace or Miralax have worked. Because I take enough pills I just put 1 tablespoonful in my morning smoothie.
Something I haven’t seen mentioned and maybe the doctors of the group can weigh in, but I was teaching once with a (retired) nurse who liked to travel worldwide. We were talking about interstitial cystitis and being unable most time to differentiate between a UTI or just a bout of pain. She said that when she’s traveling to remote portions of the world where access to antibiotics were limited. She said what she did was take vitamin C with her and to take up to but not past the loose stool/diarrhea stage. If the vitamin C takes care of the pain, I was good, if it persisted I would get a urinalysis done. I’ve used that advice since for both UTI pain (without infection) or for constipation.
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I was prescribed 1-2 150mg magnesium citrate capsules 3 TIMES A DAY. What I’ve settled on is 2 in the am, 1 midday and 1 near bedtime.
Seems to be working for me, although I might sit a while.
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Hi
My mom is 82 yrs old and she has Parkinson’s for over 7 years and we control her constipation with calm magnesium, it works wonders, regular like a clock with no side effects and addiction , and I can tell you that she doesn’t drink a lot of water , at least not as much as I would . I hope this help
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What form/brand of magnesium do you use? My husband couldn’t swallow the large capsules and didn’t like the taste of liquid. That was many years ago and now all of his PD symptoms are worse including constipation. He might consider giving it another try.
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My husband suffered with constipation for a few years and nothing seemed to work. My Chiropractor suggested giving him 3 150 mg Webber Magnesium Citrate capsules daily at breakfast. He had problems trying to swallow them, so I open them and sprinkle the powder on a spoon full of yogurt. This helped but I found if I also added a half glass of prune juice it worked like magic. Hope this helps.
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Calm can be purchased in gummy form. Very easy to take. Note that Calm gummies are magnesium citrate (150 mg) which is the form of magnesium that you want for relief of constipation.
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I take PS128 (probiotics)for constipation, it helps for half year. But, now, I have to add Fibber supplements with PS128 to make it work.
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There’s some really keen suggestions in these forum posts. I’ve never even heard of some of the remedies mentioned but that’s to be expected (on my part). I can’t eat pruned sadly — too revolting! The Senna leaf / fruit leaf tea sounds perfect. I’ve tried “Mucinex” in NZ but it is just a powered form of ruffage in my estimation. Rob Harris — thanks for chiming in — great to hear from you! Been a while. Your remedy sounds a bit tricky. I have never had to use enemas in the past. Maybe I’ll try your idea. The brevity of the treatment has me somewhat perplexed. I guess your recommendation is good for an emergency situation aye? I like the Senna tea at this stage. Will give that a go.
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5 prunes after lunch and 5 prunes after dinner works for me. I think of it like a delicious dessert.
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