Parkinson’s News Forums Forums Using Our Forums Freezing and walking issues

  • SusanJ

    Member
    August 23, 2024 at 8:48 am

    Aurora

    I am also interested in this product as FOG is my PD issue. The price range is $1295. to $2095. I am sure no insurance will cover these at this time. I have sent the company a question regarding refunds if shoes do not work as expected.

    • Camille

      Member
      October 9, 2024 at 10:11 am

      I am going to try them out tomorrow, as the company will be in Boston for one day only. I have bad bradykenesia (slow step walking) with freezing. I am praying that these NUSHU’s will work for me. Money is no object when my well-being is on the line. I will let the Forum know how I do.

      CAMILLE

  • jpjr

    Member
    August 23, 2024 at 9:02 am

    Aurora, without being too brief, I would get the shoes as quickly as you can. I heard about them before they became available in the US. I finally got a pair in January 2024 and have found them to be life-changing. My problem is with freezing when I try to start walking (Once I am moving, I am fine.) The shoes have almost completely eliminated the issue. So far, I have only scratched the surface of their capabilities, once the Android version of the software is available, I should be able to fully use their capabilities.

    John C

  • JB

    Member
    August 27, 2024 at 8:48 pm

    My husband bought them in Europe last year. He’s 62 yrs old, had PD for 30+ years.

    The company Magnes is amazing, as are the people, but the shoes did not help him with his falls. We had hoped they may, but the shoes are a walking aid, not a falls prevention aid. Whilst his walking is pretty much normal, apart from some cadence, he is able to walk and jog no problem. So his problem has always been when he is stopped and it certainly was worth buying the shoes to see if there was some change for him.

    We tried for a month, but the festering from stopped or turning, or when his attention is somewhere else apart from walking did not improve at all. He was still going down 10-20 times a day. Unfortunately the shoes just did not help him at all. They are very comfortable and stylish also.

    So pleased they have worked for many of the people that use them.

    • kmr

      Member
      October 11, 2024 at 2:43 pm

      Hello, my husband falls 5-10 times per day. It’s a “slow” fall so thus far no injuries that required medical attention…although bruises and minor scraps. I get worn out “picking” him up all day. How do you handle that?

  • neurodoc

    Member
    August 29, 2024 at 9:37 am

    Vibrating shoes.I checked it and they are gym shoes actually.What I say to my pts in winter wear gym shoes up to the uncle like the athletes of MBA

  • SusanJ

    Member
    October 3, 2024 at 3:33 pm

    Aurora… I got my shoes and activated them today. They are great. I was walking with no freezing. The company is wonderful. I dealt with Chinouk and she was very responsive. My neurologist has a caution for me. He said that this type of product can lean to entrainment which he thoroughly explained. Simply put the brain builds up a resistance to the shoes activity. He recommended using intermittently which I was planning on doing. I will be grateful for any improvement I can get in my freezing. Thank yo for your post as I don’t know when I would have heard about these shoes.

    Sue

    • Aurora

      Member
      October 8, 2024 at 9:56 am

      Oh Susan, that’s great news! Thank you for sharing, I’ll then get them as well!

      <3

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