Forum Replies Created

  • mary parker

    Member
    September 21, 2021 at 10:02 am in reply to: Do you have theories about why you have Parkinsons?

    All of the replies are so interesting. MY Theory is at age 14 I almost passed away from carbon monoxide poisoning. Over the years I developed symptoms very slowly until diagnosed at age 60. The first symptom was for many years people kept telling me I walked with a limp.

  • mary parker

    Member
    September 21, 2021 at 9:43 am in reply to: Do you take melatonin for sleep disturbances?

    I take a product called DreamWell Ultra, Melatonin plus GABA. Also I take magnesium at night. The 2 of these together offers a good nights sleep for me.

  • mary parker

    Member
    April 28, 2021 at 10:30 am in reply to: Entacapone

    Dyskinesia is my most annoying off time.  Entacapone made it worse.  The thing that helps the most for me is SAM-e and DHEA first thing in the AM.  SAM-e is best taken on an empty stomach at different times from other meds which can make timing tricky, but it eliminates dyskinesia and improves my mood.

  • mary parker

    Member
    April 17, 2024 at 11:27 am in reply to: Use of infra-red devices

    I have purchased a Symbyx device and too early to tell if the helmet is helping. The hand held PD device has relieved TMJ, painful jaw while chewing. It also relieved shoulder pain. So far I am happy with it.